Ah...the world of the brain and everything centralized vestibular malfunction-dysfunction and syndromes that come from the microscopic area within the cochlear. While researchers and scientists know about this region and are now studying it with great interest, they have few answers as to how to treat anything related to any of the multiple functional disorders that center in and around this area. I have had hearing loss since birth - no known reason but suspect genetic. Over the years since I was not diagnosed until I was 48 years old, I encountered and was involved in three MVA, was diagnosed with two anerysms of the Circle of Willis - inorperable, have fallen from 20+ feet resulting in compound fractures of left leg. and complete fracture of left foot, have had COVID, and Influenzas twice, almost died from C-diff sepsis and have a compromised immune system. I have been diagnosed with centralized vertigo, vestibular migraines, hypercusis, and vision changes of the right eye. With these symptoms, I micromanage my care with my physicians 50/50%. I am a retired nurse - so I have learned how to care for myself and worked to learn about these difficulties. They didn't just all happen at the same time. They started a little at a time and great to be monster that needed to be tamed. Trial and error in med management, hearing aids and sound mufflers helped. I stopped going out - avoiding loud places - I reported them by giving my opinion on all places I visited - giving bad reviews wherever I encountered TOO much noise. People stayed away and the businesses noticed and changed their ways. I speak my mind and if they don't like it - I am a consumer and will take my business else where. I am a leader with HLAA and show them the TALK/WALK. This goes for doctors and health care workers as well. Even my own. If they don't like it - I find another doctor. Truth may hurt but it helps. I have a plan that works for me now because I have meds that work for me as my diseases advance as I am aging. I have memory loss because my brain is atrophying - no help with my brain in early life to hear. We must help our kids understand this before they are like me. It is too late for me but not for them Kids today have grandparents damage to their ears already. It's a shame. There is no catching up for them.
The best thing you can do is work with your doctors and learn about each of your brain diseases. Search the research organizations that are actually looking at this right now. Stay tuned to their studies. Ask for what is currently being treated for your symptoms - give them a try. Diary you symptoms like I do and have for many years. That is the only way you can see what is happening. Mine are tracked by 5 different organizations including the Alzheimes org. because I have it. I have two university systems waiting for my brain when I die. I am a hot tomato! Anyway... Hearing Health Foundation is an excellent organization that tracks many of our brain disorders - you can check out their website and receive their magazine. Eloise