1. < Digestive Health

Stomach issues I’ve been suffering with for years with no help!

Posted by cotton @cotton, May 22, 2019

I have been having a stomach problem I can’t find an answer too as to why I get extremely sick at my stomach every time I have a Bowel Movement, my GI Doctors I have seen say they don’t know why this is happening to me just that it is a complex issue the Doctor doesn’t seem to understand how very sick I get It doesn’t matter if my stool is normal, diarrhea or constipated I still get the awful nausea..I have gastro esophageal motility disorder & gastrointestinal motility disorder and bile induced gastritis..I’m feeling desperate to stop this bathroom issue...The medication my primary Doctor has given me for nausea doesn't help.... I would appreciate it so much if anyone has this problem if you would share your problem with me & what you do for it & WHY it is happening...Thank you all so much..

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lasirvent | @lasirvent | Mar 27, 2022

Check into the Mesentery Artery Ligament Syndrome. It seems your symptoms are similar. If you feel this is a valid lead, follow MALS AWARENESS on Facebook. Hope you find answers.

REPLY
murphy1231213 | @murphy1231213 | Mar 28, 2022
In reply to @rozy288 "I spent 4K out of pocket on 3 tests at Mayo Clinic Jacksonville. It took 7..." + (show)
@rozy288

I spent 4K out of pocket on 3 tests at Mayo Clinic Jacksonville. It took 7 months to finally get appt .After 5 other Gastro Dr’s in 2 states including Duke University, I thought this is my last and best try to finally help with my many chronic digestive disorders that were diagnosed thru the years.
Well Mayo although very professional, did not and could not help me .
He suggested a few weird things to me like speech therapy ( I speak perfectly normal), Diaphragm breathing coaching ( I already know how to do that ), or try another antidepressant ( no thanks )! I have Gastritis, Esophagitis, Class B GERD, diverticulosis, small hiatal hernia, small flat polyps on my stomach lining, I deep wet belch over 2000 x day / night , my gut ( intestines)churns bad 24/7 and sometimes so loud it wakes me up . I sleep poorly even taking Ambien. I have cleanest diet one can have and have done over 15-20 tests and everything holistic you can do . Started at 52 now I’m 60 . It’s ruined everyday for 8 years.
My Sons big wedding 💒 is next Sat and I’m so nervous about the whole weekend!
I pray 🙏 that you find the right Dr. To help you . So far I haven’t. Not sure where to go from here . It’s awful 😢.

Jump to this post

I have many of the same things you have and many tests as well. Mine started when I was about your age. I belong to two different sites where we all share what works for us?
I have been thinking that we should be looking for a common thread that brought it to this point. I am wondering if the overuse of antibiotics for a chronic sinus infections I had?

REPLY
1 reply
rozy288 | @rozy288 | Mar 28, 2022
In reply to @murphy1231213 "I have many of the same things you have and many tests as well. Mine started..." + (show)
@murphy1231213

I have many of the same things you have and many tests as well. Mine started when I was about your age. I belong to two different sites where we all share what works for us?
I have been thinking that we should be looking for a common thread that brought it to this point. I am wondering if the overuse of antibiotics for a chronic sinus infections I had?

Jump to this post

I never take antibiotics unless I’m really sick with bacterial infection or something ( which is rare ).
I hope you find help too

REPLY
jap57 | @jap57 | Mar 28, 2022
In reply to @rozy288 "I spent 4K out of pocket on 3 tests at Mayo Clinic Jacksonville. It took 7..." + (show)
@rozy288

I spent 4K out of pocket on 3 tests at Mayo Clinic Jacksonville. It took 7 months to finally get appt .After 5 other Gastro Dr’s in 2 states including Duke University, I thought this is my last and best try to finally help with my many chronic digestive disorders that were diagnosed thru the years.
Well Mayo although very professional, did not and could not help me .
He suggested a few weird things to me like speech therapy ( I speak perfectly normal), Diaphragm breathing coaching ( I already know how to do that ), or try another antidepressant ( no thanks )! I have Gastritis, Esophagitis, Class B GERD, diverticulosis, small hiatal hernia, small flat polyps on my stomach lining, I deep wet belch over 2000 x day / night , my gut ( intestines)churns bad 24/7 and sometimes so loud it wakes me up . I sleep poorly even taking Ambien. I have cleanest diet one can have and have done over 15-20 tests and everything holistic you can do . Started at 52 now I’m 60 . It’s ruined everyday for 8 years.
My Sons big wedding 💒 is next Sat and I’m so nervous about the whole weekend!
I pray 🙏 that you find the right Dr. To help you . So far I haven’t. Not sure where to go from here . It’s awful 😢.

Jump to this post

Sorry for all you’re going through. Speech therapy can help many issues other than talking. Do some research. Maybe learning a different way to eat or something else that can be addressed by the therapist could help.

REPLY
1 reply
rozy288 | @rozy288 | Mar 28, 2022
In reply to @jap57 "Sorry for all you’re going through. Speech therapy can help many issues other than talking. Do..." + (show)
@jap57

Sorry for all you’re going through. Speech therapy can help many issues other than talking. Do some research. Maybe learning a different way to eat or something else that can be addressed by the therapist could help.

Jump to this post

I eat super small portions and healthy but I still get soooooo sick 🤢, no matter what . I can’t eat out , no junk food or fast food or caffeine , low sugar … , low dairy , No milk at all in 8 years, my digestive system just cannot handle anything. It’s in constant turmoil . It’s the 1000’s of deep wet burps that get me so bad . I’m on potty 🚽 a lot too . I’ve tried it all believe me , even hypnosis 3 x . Nothing helps .

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carolinesearch | @carolinesearch | Apr 4, 2022

My issues are complicated and truly exasperating (or is is exacerbating)? Why is my belly so big? At times not as big as others. I weigh 124 lbs. at 5' 2". It is all out front, not fat elsewhere. Why do I have diarrhea chronically? Why do my meds and supplements pass through my body in whole form? (I see them daily in the toilet). I am suffering lack of benefit from prescriptions and supplements. I use chewables or liquids where possible. My immune system is challenged already and I feel not getting the benefits of meds, etc. is causing susceptibility to invasions of new maladies. I have diabetes II and take Metformin to help lower my glucose, but it is one of the most noticed in the toilet. I have been tested for the usual culprits, IBS, parasites, etc. I have an Interstim implant and see no relief .(For fecal incontinence). I am led to believe that maybe, just maybe, leaky gut may be my problem, but doctors don't see it as a real thing. Do you know anyone who has had a fecal transplant? I feel ready to give up, but faith in God keeps me hopeful.

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brendaharvey | @brendaharvey | Apr 5, 2022

Wish I knew! I have been sick for 3 years. Finally diagnosed with Gastroparesis. Now I am nauseated every time I eat! Losing my mind!

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vayankee | @vayankee | May 10, 2022

Hello,

I have been having digestive problems, mostly gas or SIBO-related for 9 years. I am beginning to suspect internal scar tissue after a couple of strains in my groin over the years. Have you had surgery or injuries that might have led to scar tissue?

REPLY
1 reply
brendaharvey | @brendaharvey | May 12, 2022
In reply to @vayankee "Hello, I have been having digestive problems, mostly gas or SIBO-related for 9 years. I am..." + (show)
@vayankee

Hello,

I have been having digestive problems, mostly gas or SIBO-related for 9 years. I am beginning to suspect internal scar tissue after a couple of strains in my groin over the years. Have you had surgery or injuries that might have led to scar tissue?

Jump to this post

All the doctors and all tests have found nothing related to this condition. From what I have researched, Gastroparesis can be caused from damage to the Vagus nerve. A few months before the pain started I had fallen, landing on my butt!
Was on carpet and I didn’t feel anything was wrong.???
I am better with the nausea at this writing. I am taking IBGUARD at least 20 minutes prior to eating. I am following a strict diet. I am getting better.
Thanks so very much for the hug💕🌷

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