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Radiation Lung Fibrosis, Bronchiectasis, Traction Bronchiectasis

Posted by tessa2 @tessa2, Oct 29, 2021

Had Hodgkin's in 1992! Mantle Radiation. Now 69 years young and getting some late effects from past treatments. No chemo. Looking for help with diagnosis of Traction Bronchiectasis. Not much info out there. Was taken by ambulance recently to hospital for coughing up a lot of blood and "tissue". Very frightening! Bronchoscopy showed clot which they aspirated. Doctors said this could happen again.
As far as Bronchiectasis, I don't have typical symptoms such as productive cough. Thinking about Mayo at this point. Any help or advice would be very much appreciated or if you hv same issues would love to hear from you. Kathy

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

tessa2 | @tessa2 | Nov 24, 2021
In reply to @rits "As far as someone who has your diagnosis, not exactly, but I do have problems resulting..." + (show)
@rits

As far as someone who has your diagnosis, not exactly, but I do have problems resulting from radiation which I had 28 years ago. When I was told that they would treat my endometrial cancer with extensive radiation rather than chemo, I was glad that I wouldn't lose ode my hair. So silly. I have bronchiectsdid snd had another cancer caused by the radiation as well as two skin growths. It messed up my digestive system and I have a dilated esophagus as well as some lung fibrosis. When I saw the surgeon, oncologist and a small bowel gastroenterologist, they all told me, "We don't do that any more." (extensive radiation).It makes me wonder how many of us are still struggling that they did do it to!

Anyway just wanted you to know that there are others of us struggling with the results of long ago radiation treatment. Good luck at your appointment.

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Thank you for your comment. Yes there are quite a few of us still out there. Most primary docs don’t know how to deal with us. Do u see a specialist for all ur symptoms? Happy thanksgiving

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nadinemay6 | @nadinemay6 | Mar 26, 2022

I'm going t b 62 iin a few months and just diagnosed as above. Beyond mildly terrified..would love to exchange information with someone else who has th "traction" broncheistasis type-

Best wishes for us all ! Nadine

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1 reply
Amanda Burnett | @amandaa | Mar 27, 2022
In reply to @nadinemay6 "I'm going t b 62 iin a few months and just diagnosed as above. Beyond mildly..." + (show)
@nadinemay6

I'm going t b 62 iin a few months and just diagnosed as above. Beyond mildly terrified..would love to exchange information with someone else who has th "traction" broncheistasis type-

Best wishes for us all ! Nadine

Jump to this post

@nadinemay6, welcome to Mayo Clinic Connect. You will see I moved your post to a discussion so you could meet other members like @tessa2 and @ritapearl to exchange experiences.
What symptoms were you having that led to the diagnosis?

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