Any info on epilepsy post-CDiff & temporal lobe brain tumor?

Posted by susieihavenolife @susieihavenolife, Mar 25, 2022

In November of 2015 I developed a bad case of cdiff. By the time I got to the hospital that had the new medicine for cases as severe as mine, my son was told I had a 25% of survival. After being in the hospital for 2 weeks I wanted OUT. In January I had 2 car accidents and was transported to the hospital by ambulance because I was unable to communicate. I didn’t remember any of it. My physician sent me for an EEG and a MRI. Where they diagnosed me with epilepsy and a brain tumor. I have been told that the epilepsy was caused by the septic state my body went into after the CDiff. They have no idea when the tumor first developed and I have had no significant growth from one MRI to another. I first had them every 6 months and have now been moved to two years, so there has been growth in the last 6 years.
Does anyone else have information to share on this? Yesterday I was told that I have white spots on my brain that indicated areas of my brain that are dying. These are not on any previous MRI’s. I’ve had a rough day today.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@susieihavenolife
Do you have Focal/Partial seizures?
Are these spots on both temporal lobes?
Have you been diagnosed with Temporal Lobe Epilepsy?
Why don't they remove the tumor?
Take care,
Jake

REPLY
Please sign in or register to post a reply.