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PKD Transplants: Did you remove your second kidney?
Transplants | Last Active: Sep 15 4:40pm | Replies (17)Comment receiving replies
I wanted to report that I had my second kidney removed a few weeks ago at Mayo with Dr Prieto. I was amazed by how quickly I recovered! Dr. Prieto used an existing c-section scar, as his point of entry, not particularly handy for him, I'm sure, but so much better for my recovery. I had minimal pain for 4 days and was managing pain with a few Tylenol within 3 days of surgery. I feel so much better not having any diseased kidneys in my body. I can breathe again. (PKD often feels like being pregnant, where you can breathe but everything feels squished). Thank you all, for helping me gain the courage to go through with something that was nowhere near as difficult in reality, as my mind had built it up to be:)
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@stephanierp - Thank you so much for sharing your happy news!
Being able to breathe without feeling squished sounds wonderful. I think that anyone who reads your response and is faced with a decision as you were about this surgery, can find a message of Hope in your experience.
Stephanie, How will this new freedom affect your life as you go forward? Will you be able to add any new activities? Do you need to downsize your clothing?
Will you have any kind of post surgery follow up or additional labs?
So glad you went through with removal and also had a good experience!!!. Feels good not having everything squished! I have less pain 🥳
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@stephaniep So glad you checked in with us today! I have heard that Dr. Prieto is an amazing doctor, definitely! You're right, we often build up a script in our minds before a procedure, and then find out our experience was not all that we imagined. I know your words are encouragement to others reading here.
Ginger