I believe it is from treatment. There are too many cases of people with similar symptoms that have lasted a long time after treatment has been finished. I have been doing research on others out here. There is no way that I'm the only one that still has lingering effects 8yrs later. Sure enough, there are several of us!
weed is the only thing that has gotten me through it all, I use it for the fibro and to help the cptsd I was left with. i still cannot find words for where the interferon took my brain but it left me with ptsd depression etc etc as well as the physical stuff, the drugged me for "mental health" for years before I snapped and just started using weed for it all.
That’s the short of my story as well.
Along with physical pain the brain fog.
Something is wrong with the amount of histamine in my body. I have histamine flushes after every time I eat… Every time.
I wake up in a cold sweat in the middle of the night and it’s not my hormones… It’s been happening for years and years.
Also I now have two detached retina‘s… Not ripped yet but deteriorating, amongst other off of the long list of Side effects that you can read about now I guess right on the box..
You can read about all of the side effects here on this website.
I’m a woman that worked hard to have my own business but my husband has to run it now because I have never been the same after pegasus Interferon with ribavirin.
Mentally or physically in a lot of ways.
I hope that somehow there is some kind of justice that comes. .
And if they’re still using it they need to freaking stop! I looked but I have not seen anything major as far as any litigation about it… If anybody has any information that’s worthwhile I’d appreciate hearing about it.
And… If there’s anyone out there who is having problems with histamine in their body like you have too much of it… I’d like to hear about it…
…C
Hi, I just went into the FDA website n turned these drugs in and told them everything that I am going thru. I would advise that everyone do that and maybe we'll get noticed a little quicker. I will not let this go...to many of us suffering and they will know me soon (big pharma)!! It took me 7 yrs to figure this all out n have notified all of my doctors...joke there. Lawyers keep turning me down. I will get the attention that it deserves before I die...which feels like everyday anymore!
are you still trying to find Lawyers for class action because I thought same. Im in Australia.
I bet the maker/seller knew dangers, knew they had a better but cheaper option. The 6 week tablets that followed peg int sales.
I want to know what docs etc got from encouraging.
why the class action wasn't made available to all takers and sufferers? Who was allowed to join in? Was is HUSHE UP?
-because I'm over hoping for a cure.
Mostly, as I'm contacting a real person I hope you feel ok today. As far as you can be towards great. All the best, Karin
Since completing this horrible treatment in 2003 within a very short time my life changed for ever. I became diabetic, then severe muscle cramps, Degenerative Joint Disease, Peripheral Neuropathy, Chronic Venous Insufficiency, Peripheral Arterial Disease and of course brain fog. I had my left hip replaced, lower back surgery and I need a lot of procedures for my legs, but the Chronic pain saps the life out a of me. I haven't worked since 2011 now disabled since 2014. I could go on but what I really like is my life back, I always worked I started at the age of 6 and I'm so lost not working. Not to mention medical bills and the sad part a lot of Doctors don't even no about this
not even doc who treated me for 10+ yrs before during and after it admitted knowing of it and kinda ignored complaints. Seems they don't wish to tell us
Anyone have news on the lawsuit or class action suit by the sufferers mentioned in this discussion please? I read here it was finalised however I'd still appreciate the info. Thanks.
These companies that care not a bit for their consumers are familiar to suing others. Being sued too. Don't feel greedy looking for financial relief from them.
I thought it was me alone. I used to read so many books. Every night when I woke, transport and whenever I could. I quickly noticed it didn't work anymore. I couldn't explain it.
I thought 'side effects' were only whilst taking the medication. Forever? I'd not have taken it.
are you still trying to find Lawyers for class action because I thought same. Im in Australia.
I bet the maker/seller knew dangers, knew they had a better but cheaper option. The 6 week tablets that followed peg int sales.
I want to know what docs etc got from encouraging.
why the class action wasn't made available to all takers and sufferers? Who was allowed to join in? Was is HUSHE UP?
-because I'm over hoping for a cure.
Mostly, as I'm contacting a real person I hope you feel ok today. As far as you can be towards great. All the best, Karin
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What does everyone do to mitigate all the side affects?
I have used the Medical Marijuana. That seems to mitigate some of the side effects
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3 Reactionsi'm amazed on how many people are suffering an how many doctors don't know about this syndrome.
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1 ReactionYour not the only one…same
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1 ReactionThat’s the short of my story as well.
Along with physical pain the brain fog.
Something is wrong with the amount of histamine in my body. I have histamine flushes after every time I eat… Every time.
I wake up in a cold sweat in the middle of the night and it’s not my hormones… It’s been happening for years and years.
Also I now have two detached retina‘s… Not ripped yet but deteriorating, amongst other off of the long list of Side effects that you can read about now I guess right on the box..
You can read about all of the side effects here on this website.
I’m a woman that worked hard to have my own business but my husband has to run it now because I have never been the same after pegasus Interferon with ribavirin.
Mentally or physically in a lot of ways.
I hope that somehow there is some kind of justice that comes. .
And if they’re still using it they need to freaking stop! I looked but I have not seen anything major as far as any litigation about it… If anybody has any information that’s worthwhile I’d appreciate hearing about it.
And… If there’s anyone out there who is having problems with histamine in their body like you have too much of it… I’d like to hear about it…
…C
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2 Reactionsare you still trying to find Lawyers for class action because I thought same. Im in Australia.
I bet the maker/seller knew dangers, knew they had a better but cheaper option. The 6 week tablets that followed peg int sales.
I want to know what docs etc got from encouraging.
why the class action wasn't made available to all takers and sufferers? Who was allowed to join in? Was is HUSHE UP?
-because I'm over hoping for a cure.
Mostly, as I'm contacting a real person I hope you feel ok today. As far as you can be towards great. All the best, Karin
not even doc who treated me for 10+ yrs before during and after it admitted knowing of it and kinda ignored complaints. Seems they don't wish to tell us
Anyone have news on the lawsuit or class action suit by the sufferers mentioned in this discussion please? I read here it was finalised however I'd still appreciate the info. Thanks.
These companies that care not a bit for their consumers are familiar to suing others. Being sued too. Don't feel greedy looking for financial relief from them.
I thought it was me alone. I used to read so many books. Every night when I woke, transport and whenever I could. I quickly noticed it didn't work anymore. I couldn't explain it.
I thought 'side effects' were only whilst taking the medication. Forever? I'd not have taken it.
Hi Karin-I’ve about given up finding a lawyer! Been turned down by over twenty at this point! Pls tell me ur illnesses??
Lisa
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