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Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (514)

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@ldestella

Hi Karin-I’ve about given up finding a lawyer! Been turned down by over twenty at this point! Pls tell me ur illnesses??
Lisa

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Replies to "Hi Karin-I’ve about given up finding a lawyer! Been turned down by over twenty at this..."

Hello Lisa,
Hope you're doing ok. That sounds dreadful for you, your bone marrow. Look I'm in Australia. Did 11 months in '07.
I Have earache always, tinnitus, nausea, travel sickness, joints, Blurry vision deterioration, weird fast rushes of heart beating and suddenly puffed out, migraines and other headaches, neck pain always, early menopause, IBS, seems I'm always straining something. My skin is dry bits, red and patchy. Itchy. No shine or thickness to my hair and no eyebrows, finger n toenails weirdly buckled n brittle. Moods and fogginess. I used to read so much, at every chance. Not now. Concentration missing. Bad light sensitivity need inside dark glasses often and tent the bed for darkness. Plus I hate being so lazy and unmotivated. Feel a bit like I'm unimportant. Perhaps we need one or two high profile sufferers. To gain attention.
I haven't been to lawyers but keep net searching.
I'm so sorry about your bones! Cant imagine that. Be careful. I hope there's a silver lining.
love Karin
I think if possible try not to think about it. At least as far as the thinking is negative for you. (tho I feel the thinking part is part of the result. A symptom of the lagging depression etc. )It won't go away but lawyers? They'd likely be offered more to fail (sorry I am cynical). Unless someone finds a 'do-gooder' who's appalled and also part of a huge successful firm I don't see a poss outcome for us. hope I'm wrong. USA probably has highest results in class action so maybe more likely to attract lawyers. Doubt other countries could join but who knows. There must be lists in every countries Dept Health of patients who used it. I read there was a payout in 2004 but must be wrong seeings I did it in 2007. I hope.
All the best. I'll definitely alert you if info pops it's head anywhere. I truely wish you well Lisa. I still find music the best soother. Do try sniffing some different aromatic essential oils. They also soothing. Sorry if that sounds trite.

Hi @Idestella - I've been deep diving the clinical research on the long term effects of IFN/Ribavirin treatment for Hep C. So far, I've found a 2010 article published by an MD at Johns Hopkins that discusses the documented effects of IFN on some people: "A key principle of the type I IFN system is rapid induction and amplification of the signaling pathway, which generates a feed-forward loop of IFN production, ensuring that a vigorous antiviral immune response is mounted. Although such feed-forward pathways are highly adaptive when it comes to rapid and effective virus eradication, this amplification can be maladaptive in immune responses directed against host tissues." From article: Type I interferons: crucial participants in disease amplification in autoimmunity https://doi.org/10.1038/nrrheum.2009.237
Also, other articles I've found so far perfectly describe these autoimmune symptoms we've suffered all these years, including thyroid disease, and possibly due to changes in the bone marrow and thus blood, caused by this treatment. I'm in the midst of this research and have a class action suit in mind - to be organized for all individuals whose lives have been torpedoed by IFN treatment. I want to be clear that at this point, I have NO idea if a class action suit is feasible, but I am interested in speaking with any and all who have been harmed, and especially if you have documentation of your health conditions and treatment. Personal Injury attorneys often cite the statute of limitations imposed by states - very short time periods. But what about all the class action suits for Mesothelioma (for example) 20+ years after the fact? So many people have been harmed in such extreme ways, not to mention the suicides and deaths. Lisa, since you've spoken to lawyers, I'm interested in talking to you. I also invite others to email me at: assistyoutosucceed@gmail.com PLEASE SEND YOUR NAME, ADDRESS, PHONE NUMBER, EMAIL, ALONG WITH A BRIEF DESCRIPTION OF YOUR TREATMENT AND INJURIES. I will contact you. Thank you, Lisa Gladstone

Hi Lisa, Please check your email for my response. And if you'd like to text me your phone number we can discuss. Blessings, Lisa G.