Hello @shellmats, Welcome to Connect. It does make you wonder when the treatment sometimes brings more pain than the original problem. You mentioned that sometimes you don't hurt at all and it is usually when you don't eat for days that you feel better. I know that it can be hard when your family members don't understand what you are going through. That can definitely cause you more stress. Do you think some of your symptoms might be food related?

Are you also hypersensitive? Do you bruise easily? Does it take you a long time to heal? Unfortunately family and friends don't understand what you're going through. I guess it's a blessing and a curse that one of my other family members has it so now everyone knows that it's real, whatever it is. I'm the same way sometimes I'm in agony and sometimes I feel pretty normal.

I understand exactly how you feel. It is so hard when your friends and family have all kinds of suggestions for you like you need to go out more, exercise more, eat a healthier diet,…. (Like I haven’t already tried all these things but all it did was make me in more pain, more depressed and not feeling understood. We just have to not listen to others who make us feel like we are just looking for sympathy.