Thank you for your reply! I'm due to visit Rheum next week and will try to research beforehand. I'm very sorry you and your wife have been ill with this condition for so long. I wonder if it is possible for a US citizen to participate in medical research abroad because I'm really very frustrated with my lack of results and that this has dragged on for so long already. It seems as though the majority of doctors I have spoken to act as though this has been happening to me all along and there has been no change of quality of life etc, and it makes me feel basically crazy. So I thank you again for validating my concerns.

You may have just helped out more than you know, been struggling with these symptoms far too long, no one could explain what's going on. My IgG was also over 600 but according to the doctors there were "several possible causes" and no one will address them. This sure sheds light on it, thank you!

I know this is an old post but wanted to share that my EBV was also 600 and I, unfortunately, was just diagnosed with ME/CFS and it is an insidious disease! I hope no one else gets this diagnosis and pray that you are all feeling better this year!!