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Post COVID pneumonia on oxygen at home. How long does O2 weaning take?

Posted by susie333 @susie333, Jan 23, 2022

daughter discharged a few weeks ago on 3L. she is young (37) with 2 children and trying to wean down about every other day. her heartrate continues at 100+. she sees pulmonologist for initial virtual visit end of month. about how long can this take? I know everyone is different. any general parameters to gage the weaning process. she had covid pneumonia. thanks!

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dvierheller | @dvierheller | Mar 22, 2022

recovery takes time. stay encouraged- it does get better- but it is called long haul for a reason- recovery is not quick. be patient, make sure she gets plenty of rest, and walk. good luck and God bless.

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susie333 | @susie333 | Mar 23, 2022
In reply to @dvierheller "i got covid pneumonia in june 2021. i have been on oxygen since. weaning is personal...." + (show)
@dvierheller

i got covid pneumonia in june 2021. i have been on oxygen since. weaning is personal. i got a portable oxygen machine (inogen) to take places. i use base unit at home. My experience has been that others thought i should be off oxygen because of their own experiences with bacteria pneumonia. but covid pneumonia is nothing like other pneumonias. the lungs are severely damaged and looking at pulse ox rates when walking ( like in a true 6 minute test) is the only way to see what someone can tolerate without oxygen. dont rush it. i actually found sleeping with oxygen very helpful to wake up refreshed. i use it with all naps. if your daughter is not above 95 when doing chores she should be on oxygen-

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I think her getting off the 02 sooner than later may have contributed to her brain fog. her husband was the reason she probably got off of it sooner. he would carry the concentrator up and fown the stairs every am and bedtime. she also admitted to taking it off when he was around.... she had 2 extreme prognosis.... at discharge from hospital and then when she saw her PCP for followup visit. after 3 months she finally had a PFT which showed minimal diffusion issue and did much better after nebulizer. so she is telling folks she has some asthma. I encouraged her to do a nebulizer first thing in am to start the day, but she's willing to use inhaler as needed instead. and she's finally calling to have the 02 concentrator (plus portable 02) removed from her home. she's been back to work for 3 weeks, 2 days a week. next week it will be 3 days a week.

thanks for ur input!

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