Unknown Body Odor

Posted by Deprest @deprest, Jan 4, 2012

I need help! I've got a bad odor coming from my body, that I can't smell. Yes it's hard to explain. Doctors think I'm making it up. In public people avoid closeness, coughing, holding their noses, avoiding me at all cost. I'm a prisoner in my home. Don't venture out unless low on food and pick times to do it. I'm constantly shamed.im healthy, clean. Homes clean, I can't explain. Have spent last two yrs going to every type doctor to no avail. My family can't smell it either. Has anyone heard of this?

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Hi, I've had a colonoscopy, is that as good as colon cleanse? Also had TMAU test done, negative. I tried detox, broth diets, eating as if I had TMAU, which is very restrictive, and none worked.

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Have you tried going to the Natural Herbal Store, they do have something for this:) and this is not uncommon.. I have heard of it alot.. just step out and address the problem, you will feel better!! Hang in there.

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Have you had any trouble breathing? Are there any other symptoms, or have you had a Cold lately? Comment and I might be able to help 🙂

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Gingerrose, this IS uncommon. I live w it, I know. I've been to about every type Doctor named to no avail. They have no idea what's going on. So I doubt if a non-medical-behind-counter person will know either. Medical Fiend, no Cold or breathing probs. I've submitted myself to tests just see if I had an illness unknown to me. So far I'm clear.

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I'm not a doctor, but a member of my family is diabetic and learned of it when he went to see his physician about an unknown body odor. The order turned out to be a condition known as "Diabetic Ketoacidosis".

According to the Wikipedia page for Ketoacidosis:

"Ketoacidosis is a metabolic state associated with high concentrations of ketone bodies, formed by the breakdown of fatty acids and the deamination of amino acids. Ketoacidosis is a pathological metabolic state marked by extreme and uncontrolled ketosis. In ketoacidosis, the body fails to adequately regulate ketone production causing such a severe accumulation of keto acids that the pH of the blood is substantially decreased. In extreme cases ketoacidosis can be fatal.

Ketoacidosis can be smelled on a person's breath. This is due to acetone, a direct byproduct of the spontaneous decomposition of acetoacetic acid. It is often described as smelling like fruit or nail polish remover. Ketosis may also smell, but the odor is usually more subtle due to lower concentrations of acetone." [Wikipedia]

There is also a page on the U.S. National Library of Medicine's website about Diabetic Ketoacidosis: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001363/.

The bottom line is that if I were you, I'd have some blood tests run to determine if I had diabetes, metabolic syndrome or insulin resistance. If none of the aforementioned conditions were present, I'd continue to investigate the cause of the odor until its source had been determined.

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Thanks PeterE, I'll check this out, never heard of Ketoacidosis.

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@deprest

Hey guys you sound like all the doctors I've seen. It is a real issue. It's there, not making this up. If you've never heard of this don't answer, I'm depressed as it is. Do you think I'd lose two yrs of my life for nothing?

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Greetings. This is my experience: when I was a girl growing up in Los Angeles I had a girlfriend who was 2 years younger. Let's call her "Rose." This was more than 40 years ago.

She was very petite and took baths on a regular basis as all the girls in our group did. We were all just normal kids back in the day when the streets of LA were still pretty safe. Rose was different. No matter how much she bathed she had a distinct and embarrassing body odor. It was very painful for her. I was the oldest and very protective of the younger girls eventhough I was only a few years older. I wanted to help her our entire childhood but I was but a child myself. Nobody knew what to do so she suffered great shame.

Years later her adolescent daughter experienced the same affliction. Again I was heartbroken but this time I was an adult determined to find answers and help so that history would not repeat itself.

LONG STORY SHORT: I asked everyone I knew if they knew what might help. Right under my nose at work was a friend with a Daughter who had once experienced the same heavy burden. This is what worked like magic for both my Friend's Daughters and finally for my now adult childhood friend: This is possibly a GLAND problem involving 5 major Glands. 2 underarm, 2 in creases
of groin ( upper points of triangle) and 1 between breasts. Simply make a paste of baking soda and water. Apply a clunk of paste on all 5 gland point locations and wait 30 minutes before bathing. Do this for 30 days straight. Afterwards the problem should vanish. To maintain you need to repeat the process only once a month. My friend's Son has same problem so it Must be heredity. The baking soda seems to draw something from these glands that are at the root of this problem. I am a sympathetic witness to how this simple solution can absolutely change lives in a big way. I HOPE AND PRAY IT WORKS FOR YOU. BEST WISHES!

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Dear Deprest,
I have the same horrendous condition you have. Others can smell or detect the sickening, foul smell but I cant! However, sometimes I get a wiff of how I smell and I can under why people are staying away or avoiding me. The condition you, I and other suffers have is called: TRIMETHYLAMINURIA, TMAU for short. Slang terms for this life altering condition are: Poop breath (Your body and breath smell like a bad case of poop and rotten onions). Fish odor syndrome (Your body smells like rotting fish), and other undesirable terms are attached to our condition....Deprest, I try to watch my diet and do the necessary things to keep myself healthy. Its not easy keeping a positive disposition with this embarrassing condition we have but there are things that can be done to minimize the odors coming fro
m our body.
BLACK TEA ALONE is well known and documented for destroying bad breath and body odors. BLACK TEA also kills foot ordor. There are many sites and forums dealing with our condition. Simply type in TMAU or TRIMETHYLAMINURIA and all kinds of info will come up. Dairy products are a no no, yet dont completely deprive myself of them. Beans, cabbage, colas, sugar, and just about everything we like will be off limits with this condition. However, BALANCE IS NEEDED.

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Hi Deprest this is Jackie again, I also agree with you about keeping yourself clean and fresh. Ive had this embarrassing condition all my life and just recently found out I have TMAU.You can take a "hundred" showers a day and be squeaky clean....and you will at times smell like high heaven. We are missing a vital component in our bodies. This component, which I forgot the name of is listed when you look up the site concerning TMAU. Anyway, this vital component is what stops the strong odors from coming thru our breath and skin or pores....Sometimes the odor can be so strong that others can smell you from across a room!....the typical hand over the nose, a glaring look, the backing away from you or cutting the conversation short as well as other dead giveaways let you know that people can smell you. Deprest what gives me peace and contentment with myself is a close relationship with God and a lot of prayer. I learned from an examination from the Bible that terrible chronic conditions like ours will a things of past one day soon......Isaiah 33:24.....that verse keeps me focused on the real important things in life. It gives me a hope for the future. Until then I keep myself busy with doing volunteer work that helps other deal with the "critical times" we are living in. Remember Deprest GOD promises to be there for those of us who are crushed at heart and bowed low because of this terrible condition call TRIMETHYLAMINURIA. Isaiah 41:10,13...

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