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Fibromyalgia..Is It an autoimmune disease?
Fibromyalgia | Last Active: 1 day ago | Replies (74)Comment receiving replies
I am new to this site but it is very helpful and insightful. I am at the point of not knowing where to turn for help and like a lot of you, I do not get any sympathy from anyone. Not that I am asking for it particularly, but I have lost a lot of friends because I am just not able to join them for drinks or go to dinner, etc. As my day progresses I get worse and the pain in my chest is really bad by afternoon. I have to go to bed and lie with a heating pad on to make it feel better. I just had a stent put in and the cardiologist assured me that it is not my heart so that was a relief. However, I just wish there was something that they could give me that would not cause numerous side effects. I would like to hear what others are taking and how the medication is affecting them. Thank you for listening. I look forward to your comments. I also have shed too many tears !!
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Hello Jude69,
I have had fibro for 18 years since I was out of the military. I have been given many prescriptions, but the one that works best is deluxatine. No weird side effects, no drowsiness, and fully aware without the pain. I still get random pains cause it's only getting worse. Hopefully I will not get worse than I already am. Some days I cannot wake up and I feel I could sleep all day. Waking up is harder as I get older. I use to be very active, but it's getting tougher. I pray you find resolution in this mysterious but completely invisible disease. Only we can know the difference of how hard it is to do just simple tasks. Sincerely, Cat
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@jude69 You certainly sound fed up and frustrated! I think i would be, too. Has your primary care doctor had any thought on this or made any referrals to specialists for you? Are you near a regional medical center or a university medical center? Make a list of your main problems/symptoms and then call these hospitals. Ask if they have a clinic or doctor for people with hard to diagnose problems. Will you do this and then post what you’ve learned?