Anyone had Pancreatic Cancer in the head of the pancreas?

Posted by yomnaelshabrawy @yomnaelshabrawy, Mar 2, 2022

anyone with a pancreatic head tumor?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

yomnaelshabrawy | @yomnaelshabrawy | Mar 13, 2022

In reply to @turkeyegg "Thank you and God Bless you!" + (show)

God bless both of you 🙏🏻

bb21 | @bb21 | Mar 15, 2022

In reply to @nae "The G/A chemo didn’t work. I will be doing a clinical trial starting March 23. We..." + (show)

What clinical trial are going on> Drugs and targets?

nae | @nae | Mar 15, 2022

In reply to @bb21 "What clinical trial are going on> Drugs and targets?" + (show)

I have a BRCA mutation. I’m out of town now so I don’t have the clinical trial information. I did write about it somewhere in this conversation! It’s hard to find though!!

Colleen Young, Connect Director | @colleenyoung | Mar 15, 2022

In reply to @nae "I have a BRCA mutation. I’m out of town now so I don’t have the clinical..." + (show)

@nae, you can find all your past posts in your profile https://connect.mayoclinic.org/member/00-4b492a9f417683e9253212/activity/comments/

Here's the link to the comment where you first mentioned the trial. https://connect.mayoclinic.org/comment/686219/

Is this the trial you'll be on?
- A Study to Test Adding Pembrolizumab to Olaparib Alone as Therapy for Patients with Pancreatic Cancer That Has Spread with Inherited BRCA Mutations https://www.mayo.edu/research/clinical-trials/cls-20522522

nae | @nae | Mar 16, 2022

In reply to @colleenyoung "@nae, you can find all your past posts in your profile https://connect.mayoclinic.org/member/00-4b492a9f417683e9253212/activity/comments/ Here's the link to..." + (show)

I can’t be sure if that’s the one or not. I’ll get back to you later in the week.

nae | @nae | Mar 16, 2022

In reply to @colleenyoung "@nae, you can find all your past posts in your profile https://connect.mayoclinic.org/member/00-4b492a9f417683e9253212/activity/comments/ Here's the link to..." + (show)

That is not the one. A Study to Evaluate Niraparib and TSR-042 in Patients with Germline or Somatic BRCA1/2 and PALB2-related Pancreatic Cancer Is what I’ll be doing.

Colleen Young, Connect Director | @colleenyoung | Mar 16, 2022

In reply to @nae "That is not the one. A Study to Evaluate Niraparib and TSR-042 in Patients with Germline..." + (show)

Thanks, Nae.
Here’s the link to the study for anyone interested
- A Study to Evaluate Niraparib and TSR-042 in Patients with Germline or Somatic BRCA1/2 and PALB2-related Pancreatic Cancer https://www.mayo.edu/research/clinical-trials/cls-20491028

I’ll be interested to learn more about your experience with this protocol and with being on a clinical trial.

nae | @nae | Mar 16, 2022

In reply to @colleenyoung "Thanks, Nae. Here’s the link to the study for anyone interested - A Study to Evaluate..." + (show)

I’ll keep you posted.

CarynS | @caryns | Mar 17, 2022

In reply to @yomnaelshabrawy "My brother is about 35 kilos overweight his doctor said it is dangerous to do surgery..." + (show)

I advise a second opinion. I wasn't told to lose weight either (was in fact instructed not to) and from what I hear most doctors don't because of what you're likely to lose in recovery

caughey | @caughey | Apr 8, 2022

In reply to @wrolsen "In 2012 I was diagnosed with small tumor in the head of my pancreas and had..." + (show)

Your statement was encouraging for me as I had Stage !A and had a whipple four months ago and first market CA19-9 came back at 13.20 and I elected to not do chemo. Good for you as it has been a long time now. Jack

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