What helps the symptoms of Small Fiber Neuropathy?

thank you i tried it last night it helped ill try it tonight

Neurologist diagnosed me with SFN at the end of last year, even though I've been having symptoms for years.. My previous neurologist, which I switched from because she wouldn't communicate well at all, thought I had MS, judging by the brain and neck MRI, and me peeing all the time, tremors, eyesight changes, etc. For the SFN patients in this group, I have a question. The front of my legs hurt pretty badly along with the top and bottom of my feet. It's like a burning pain, especially in the bottom of my feet when I walk or drive.. the leg and foot pain is absolutely horrible in the morning after laying down for hourse on and off, and hurt when I stand up to pee several times a night. Question for SFN patients here.. Do any of y'all have these certain kind of symptoms? Worse in the morning, and with just standing, walking and driving?

Hi @dcdulaney92, Welcome to Connect. Great questions and there a lot of different members in this discussion who can relate to your symptoms and hopefully shared what has helped them.
You will notice that we moved your post into an existing discussion on SFN here so that you can read through what others have shared by clicking on the link below.

-- What helps the symptoms of Small Fiber Neuropathy?:
https://connect.mayoclinic.org/discussion/tingling-from-small-fiber-neurapathy/

You might also find these related discussions helpful:
-- Small Fiber Neuropathy: What helps?:
https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
-- Small Fiber Neuropathy burning?
https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

@katec @cshallow @jimhd and others may have thoughts on the burning pain of SFN. Have you started any treatments for your neuropathy?

John, you discussed the supplement ALA and the need to take R-ALA. I have been taking this for about a month and think it as helped somewhat. Thanks.

Glad to hear it's helping you also!

I’m taking Pregabalin, which is similar to Gabapentin, but occasionally I take Naproxen 500. I take it occasionally because of side effects, but I find it helpful.

Hello @hw43, Welcome to Connect. Thanks for sharing. It sounds like you also have been diagnosed with small fiber neuropathy. Do you mind sharing a little more about your diagnosis and symptoms?

John, Thank you for reaching out. Actually, I have been to many doctors and have very confusing diagnoses. In 2011, a rheumatologist diagnosed me with Fibromyalgia. subsequently I saw 4 more rheumatologists who accepted that diagnosis and treated me as best they could. One of the last rheumatologist changed the diagnosis in 2018 because I was no longer responding to treatment and a blood test showed elevated Epstein Barr antibodies. The new diagnosis became ME/CFS, which stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, which has symptoms that are similar to Long Covid. The neuropathy started around 2018 and I have seen 4 neurologists since. Only one said :"it may be small fibre neuropathy, but he didn't treat it or go further in testing. The other three had no idea. I will be seeing a 5th neurologist in about 6 weeks who specializes in peripheral neuropathy. The neuropathy has become more intense and I occasionally wake up with numbness in my hands in addition to my feet and the pain in my feet and legs. I have never had Covid so far.

To the extent that they are separate diseases, your comment strongly suggests that Small Fiber Neuropathy ought to be a separate group from Neuropathy on this platform.

I have small nerve fibre neuropathy but it's all the same. The difference being is the nerves affected are different that's all.