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What helps the symptoms of Small Fiber Neuropathy?

Neuropathy | Last Active: Dec 12, 2023 | Replies (131)

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@johnbishop

Hello @hw43, Welcome to Connect. Thanks for sharing. It sounds like you also have been diagnosed with small fiber neuropathy. Do you mind sharing a little more about your diagnosis and symptoms?

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Replies to "Hello @hw43, Welcome to Connect. Thanks for sharing. It sounds like you also have been diagnosed..."

John, Thank you for reaching out. Actually, I have been to many doctors and have very confusing diagnoses. In 2011, a rheumatologist diagnosed me with Fibromyalgia. subsequently I saw 4 more rheumatologists who accepted that diagnosis and treated me as best they could. One of the last rheumatologist changed the diagnosis in 2018 because I was no longer responding to treatment and a blood test showed elevated Epstein Barr antibodies. The new diagnosis became ME/CFS, which stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, which has symptoms that are similar to Long Covid. The neuropathy started around 2018 and I have seen 4 neurologists since. Only one said :"it may be small fibre neuropathy, but he didn't treat it or go further in testing. The other three had no idea. I will be seeing a 5th neurologist in about 6 weeks who specializes in peripheral neuropathy. The neuropathy has become more intense and I occasionally wake up with numbness in my hands in addition to my feet and the pain in my feet and legs. I have never had Covid so far.