Hydroxicloriquine-Lupus-Prednisone & COVID19 Vaccine?

was wondering if you are any better now? I have had spinal pain since Moderna shots in march 2021, then became super severe after booster end of october. Thought it was getting a little better, but now getting severe again, crushing rib cage pain, severe back and leg, and scaring me now severe whole neck which was just right side. Been waiting months for neurologist appt April 15, but afraid I won't last that long and it's headed for my brain. Searching for any neurologist earlier...
Are you better? might give me hope. Ice isn't denting it anymore.
Thank you

@taml That sounds awful!! Have you seen any doctors and had any tests done? CT scan, MRI? What has your PCP said? I know, i know, too many questions, but I worry. Have you called any large medical centers or university medical centers to see if a neurologist is available sooner? Please let me know!

I’m so sorry to hear this. Yes, I’m doing much better. I had to be placed on Cymbalta for the nerve pain and it’s really helped me physically and mentally. I’m also taking a lot of vitamin supplements as well. Please don’t give up. Time is the healer, it took me 12 months. I would definitely try to see a Dr. Who believes in Long Covid and people who have reactions to the vaccines. It took me many before I found one. I pray you get better soon. Magnesium baths help. Swimming helped me too.

Thank you so much for the tips and encouragement. Finding a doctor who believes me or treats long covid seams hopeless. But hoping the neurologist on Apr 15 can point me in the right direction. Thanks so much! So happy you feel a bit better.

Thank you. Will try U of Minnesota. Did try Mayo when this all was severe in Nov- Dec, but they looked at my back and neck x-rays and MRI and said I need to find someone local, I wasn't serious enough for them. Go to a doctor Everytime pain is ER worthy ( resisting ER) they do nothing. Sometimes not even bother with a blood test. Did go past my fear of catching covid and went to ER Feb 9. They definitely had no belief in vaccine side effects at that time. Keep on keeping on.....thank you.

I'm not a doctor, but please alert the neurologist of the possibility you have transverse myelitis due to the vaccines. A number of patients in the Neuro V Long-Haulers Facebook group are reporting they were diagnosed with transverse myelitis after receiving the Covid vaccines. I recommend joining that group for help and support. I suffered sensory and motor peripheral neuropathy post Pfizer vaccine x 2 that was documented by two EMGs. I also had symptoms of spinal inflammation, which is unusual for peripheral neuropathy. I agree with the advice to try to be seen before April 15. If you can get in to see your primary care doctor, he or she should call the neurologist under these circumstances, and advocate for you to be seen earlier.

Thank you again....
My neighbor said it sounded like Myelitis in November.. She made 3 trips to ER after her shingles vaccine before they said that's what she had. I've brought it up to 2 GPs , who said ,"that's very rare, it would show on your MRI ,or have some paralysis, so no testing for that. Also saw an infection specialist, who said nothing big on your MRI, so no testing for anything". I think..... Do you not look for signs of cancer till it shows on an MRI? Myelitis must start somewhere, and maybe there's a mild Myelitis....which is getting worse. Waiting for paralysis or whatever it does if it goes to brain....
Anyway, bought a massager yesterday. Lots of relief as long as I'm using it. Used it 5 hours yesterday. Neck pain is better. Should have bought extended warranty, cause I think I'll wear it out. Sunshine and the massager. And people like you that care.... Great day. Thank you again for caring. Going to work hard for a neurologist appt. . It should not be getting worse......thank you.

@taml I’m happy that you have an appointment even if it is next month. Waiting is the hard part of medical care. I included a link with info and tips on seeing a new doctor. The important thing to remember is to have a completely open mind-don’t go to the appointment convinced that you have long covid. Definitely tell the doctors about your history with the disease and immunizations.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Can you start a journal of your health journey? Dates with the onset of symptoms, when you had vaccines, doctors you’ve seen, tests done, and any other problems that have come up. Sound do-able?

Don’t give up… it took many Dr’s my research for me to find a good Dr.

once again, thank you for your suggestion. I believe that too. Just tried to get into neurologist before Apr 15 appt I've waited 2 1/2 months for. Tried to get into Neurologist at University of Minnesota ( within 60 miles) and they said they are booking 4 months out. They are checking to see which category I fall into to call me back for an appt 4 months out. Seeming pretty impossible. Have been trying massage, pain is twice as bad today.... Darn! I'll keep trying. Maybe next ER visit will be closer to U Of M??? Thank you for all opinions.