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Hydroxicloriquine-Lupus-Prednisone & COVID19 Vaccine?
Autoimmune Diseases | Last Active: Oct 29, 2023 | Replies (34)Comment receiving replies
I'm not a doctor, but please alert the neurologist of the possibility you have transverse myelitis due to the vaccines. A number of patients in the Neuro V Long-Haulers Facebook group are reporting they were diagnosed with transverse myelitis after receiving the Covid vaccines. I recommend joining that group for help and support. I suffered sensory and motor peripheral neuropathy post Pfizer vaccine x 2 that was documented by two EMGs. I also had symptoms of spinal inflammation, which is unusual for peripheral neuropathy. I agree with the advice to try to be seen before April 15. If you can get in to see your primary care doctor, he or she should call the neurologist under these circumstances, and advocate for you to be seen earlier.
Replies to "I'm not a doctor, but please alert the neurologist of the possibility you have transverse myelitis..."
once again, thank you for your suggestion. I believe that too. Just tried to get into neurologist before Apr 15 appt I've waited 2 1/2 months for. Tried to get into Neurologist at University of Minnesota ( within 60 miles) and they said they are booking 4 months out. They are checking to see which category I fall into to call me back for an appt 4 months out. Seeming pretty impossible. Have been trying massage, pain is twice as bad today.... Darn! I'll keep trying. Maybe next ER visit will be closer to U Of M??? Thank you for all opinions.
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Thank you again....
My neighbor said it sounded like Myelitis in November.. She made 3 trips to ER after her shingles vaccine before they said that's what she had. I've brought it up to 2 GPs , who said ,"that's very rare, it would show on your MRI ,or have some paralysis, so no testing for that. Also saw an infection specialist, who said nothing big on your MRI, so no testing for anything". I think..... Do you not look for signs of cancer till it shows on an MRI? Myelitis must start somewhere, and maybe there's a mild Myelitis....which is getting worse. Waiting for paralysis or whatever it does if it goes to brain....
Anyway, bought a massager yesterday. Lots of relief as long as I'm using it. Used it 5 hours yesterday. Neck pain is better. Should have bought extended warranty, cause I think I'll wear it out. Sunshine and the massager. And people like you that care.... Great day. Thank you again for caring. Going to work hard for a neurologist appt. . It should not be getting worse......thank you.