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Hello @nonipoppy
I can certainly understand your needing to see a good specialist. It sounds as if you and your husband have been through some very difficult times. Do you live near a Mayo facility? There are three, Minnesota, Florida and Arizona. You might try calling the nearest Mayo facility and see if they are willing to review his records without seeing him personally. Here is a link with some more information about getting in touch with Mayo, https://www.mayoclinic.org/patient-visitor-guide/minnesota/appointments/faq
I wish you and your husband well as you seek out the best treatment for him.
Will you keep in touch? I look forward to hearing from you.
Teresa
Replies to "Hello @nonipoppy I can certainly understand your needing to see a good specialist. It sounds as..."
@hopeful33250 Thank you Teresa; I was going to call the Minn. clinic (that's the main one, correct?) Monday and see what they advised us to do. We live in western NC, so not really near any of them. I'm hoping that someone will be willing to look at all his records & scans & tell us something from that. I really don't see the need to consult in person, as the diagnosis is all based on what the scans tell them anyway...unless I am incorrect in thinking that? Anyway, thank you for the response & I will post again when I know anything new. Noni
My mother saw Alejandro A. Rabinstein, M.D. at Mayo in Minnesota. We were very pleased with his vast knowledge and professionalism.
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I am not sure you replied to the right person. I was chatting with Jennifer and she sent some info which was lost when the chat shut down, in mid conversation. I am doing very well but want info related to fitness weight training and have cardio info but not strength into.
THX