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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: Jul 15 6:48pm | Replies (116)

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@gbiffart

Hi Good to hear from different people I thought my wife would die soon as she had 2 bleeds back to back.Hearing from others I understand that this doesn't take her life immediately which gives me a clearer picture.We have had some wonderful times of being together and trust we can have more.I realize that later on this may be difficult but for now we are OK

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Replies to "Hi Good to hear from different people I thought my wife would die soon as she..."

My husband had his first major bleed in 2019 and then another more prominent bleed in 2022. He also has had several micro-spells or bleeds. He is now 67 - he does golf and enjoys cooking (not as well as before CAA.) He has significant aphasia and can not drive - the state took his license away which has been a huge problem for him- he obsesses over figuring out ways to get it back - unfortunately with this diagnosis it is not an easy one. Our state lists vascular diseases and dementia as restrictions. We try to do things that bring us joy - I admit that it has been pretty depressing- sometimes I feel overwhelmed as he can't really read well and his judgment is not always understandable. I feel the weight of the household on my shoulders and am grieving what I thought was going to be a fun retirement. My prayers to all that care for people that have this awful disease and also the loved one that has to deal with CAA - it is such an unknown - almost like you are waiting for the other shoe to drop.... or not.