Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don't know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Interested in more discussions like this? Go to the Women's Health Support Group.

@donnacarp

replying to @gardenjunkie, you have been so incredibly helpful. I looked up the credentials of the urogynecologist that I see here in NYC. She is board certified in female pelvic medicine and reconstructive surgery. Unfortunately she did not do my last surgery but I have kept an annual appointment with her or her nurse practitioner so that I can be seen in her practice and followed. I have an appointment on 01/07/21. I am thankful to have gotten an appointment so soon. I hope to learn much more about what is going on with my body now. I am a born Nervous Nelly, not a pessimist really but I do follow through right away when something isn't right.

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I live in nyc and have prolapse. Who is your urogynocologist?

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@ajcd777

I live in nyc and have prolapse. Who is your urogynocologist?

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Anne Hardart MD.

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I have been diagnosed with a prolapsed uterus, stage 4. I was referred to a urogynecologist 2 months ago, still waiting to see her. With that said I am wondering what pain is associated with this condition and what can help with the pain until I see the doctor.

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I have been diagnosed with a cystocele. Bladder prolapse. Not incontinent or getting UTI's, just uncomfortable. Dr. wants to put a pessary in. Has anyone had treatment for this. I hear it is common!

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@harper7745

Hi,
There are a lot of discussions on this and yes, it is very common. I was diagnosed about 3 years ago with stage 4 prolapse. The pessary was the best thing I did. You will need to try a few different options as there are different types and sizes. I take mine out twice a week overnight and use a low dose estrogen cream at those times. I also do pelvic floor exercises. My doctor scheduled pelvic floor PT sessions but I only went to two sessions because I was going out of town for an indefinite period of time and never resumed.

I tried 3 or 4 different types and sizes until I found the right one. You should not be even aware you have one inserted so, if it is uncomfortable or hurts or falls out, try another type or size. The doctor will show you how to insert and remove. It does help suppress the urge to urinate. If he does suggest pelvic floor therapy and your insurance pays for it I would recommend trying that also or goggling some exercises to do on your own.

Estrogen decision depends on your age and discussion with your Doctor and my dose is very low…it is to prevent or help vaginal dryness as you age. Usually , along with a cystocele comes a rectocele in some cases. UTIs are common in the elderly and for those with a prolapse who don’t do anything about it.

I would avoid any surgery…my personal opinion . The good thing about a pessary is the ability to remove it whenever you want. The PT I went to that time had one…a ring with a hole, and said she did not have to remove for intercourse and her husband (also a PT in the practice) could not feel it.

Try the pessary…it’s not permanent and I recommend it highly. You should not have any problems inserting and removing if you are not troubled with arthritic joints or have a dexterity problem.

Good luck

FL Mary

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@imallears

@harper7745

Hi,
There are a lot of discussions on this and yes, it is very common. I was diagnosed about 3 years ago with stage 4 prolapse. The pessary was the best thing I did. You will need to try a few different options as there are different types and sizes. I take mine out twice a week overnight and use a low dose estrogen cream at those times. I also do pelvic floor exercises. My doctor scheduled pelvic floor PT sessions but I only went to two sessions because I was going out of town for an indefinite period of time and never resumed.

I tried 3 or 4 different types and sizes until I found the right one. You should not be even aware you have one inserted so, if it is uncomfortable or hurts or falls out, try another type or size. The doctor will show you how to insert and remove. It does help suppress the urge to urinate. If he does suggest pelvic floor therapy and your insurance pays for it I would recommend trying that also or goggling some exercises to do on your own.

Estrogen decision depends on your age and discussion with your Doctor and my dose is very low…it is to prevent or help vaginal dryness as you age. Usually , along with a cystocele comes a rectocele in some cases. UTIs are common in the elderly and for those with a prolapse who don’t do anything about it.

I would avoid any surgery…my personal opinion . The good thing about a pessary is the ability to remove it whenever you want. The PT I went to that time had one…a ring with a hole, and said she did not have to remove for intercourse and her husband (also a PT in the practice) could not feel it.

Try the pessary…it’s not permanent and I recommend it highly. You should not have any problems inserting and removing if you are not troubled with arthritic joints or have a dexterity problem.

Good luck

FL Mary

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Thank you Mary! My gyn said he would insert the pessary and take it out every 3 months or so to clean it. I don't have arthritis, so I can probably do it myself. He also said you can't have sex with a pessary in. I can't take estrogen as I had a pulmonary embolism years ago from the pill. My doc didn't even suggest PT but my friend up North did. So thank you very much. I think I need a different doctor and PT. Louise

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@harper7745

Hi,
When you return to get the pessary, and assuming it is comfortable, tell the Doctor you would prefer to insert and remove yourself on your own schedule and have him or her show you how and do it yourself in the office. You will develop your own way of doing that. I sometimes just put one leg up on the toilet seat. And you need a lubricant on one side . Have them show you the procedure. And they should have you walk around a bit and visit the restroom to make sure you don’t feel it and also to make sure it doesn’t fall out when urinating. No need to revisit every few months and you can remove it when you want to. And tell them…depending on the style of the pessary, yes you can have intercourse if it is a narrow ring with an opening. Mine is a closed ring with a little knob in the middle that acts like a handle lol.

You can private message me if you need any specifics.

FL Mary

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@harper7745

I have been diagnosed with a cystocele. Bladder prolapse. Not incontinent or getting UTI's, just uncomfortable. Dr. wants to put a pessary in. Has anyone had treatment for this. I hear it is common!

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@harper7745

I tried the pessary and it did not work for me and I had surgery to correct the prolapse last August. All went well.

ZeeGee

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@slavmauve

I have been diagnosed with a prolapsed uterus, stage 4. I was referred to a urogynecologist 2 months ago, still waiting to see her. With that said I am wondering what pain is associated with this condition and what can help with the pain until I see the doctor.

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@slavmauve what type of pain are you having? Mine was mostly a pulling feeling and irritation from my bladder hanging out of my body. Moisturizer can help with the badder irritation.
ZeeGee

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I had some vaginal/vulva surgery done last week, and during this they found that I had a prolapsed bladder. This condition caused my urethra to be a bit obstructed, and this obstruction was the reason for some voiding problems I had. They fixed the prolapse and I had to have a Foley catheter for 10 days to allow the urethra to heal again. The catheter was pulled yesterday, and I can pee like a normal person again. I am glad that they did this surgery.

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