Prolia treatment for osteoporosis: What is your experience?

@migizii
Sometimes my yahoo email will send Connect messages to the spam box. If I go to the actual online version of yahoo mail and not app and mark a message as not as not spam it is usually good for a few months and then the process has to be repeated. The same may be happening to you. … even if different email carrier.

Oh .. also check your settings at Connect … you may have accidentally unsubscribed to something or changed some other setting.
ZeeGee

Hi,
I have high risk osteoporosis. I took prolia for 2 shots. I am so sorry that I did! After the second shot I was in constant pain in my legs - worse when I laid down, my finger joint grew and my hair fell out - about 1 1/2" all around my face. Now I look like a witch! I told my endocrinologist I was stopping but wanted to know what would happen. He said without drugs I would have a 10% chance of a broken hip and a 25% chance of any broken bones in the next 10 years. I will take those chances. I now feel great - drug free except for calcium and vitamin D. I do a few exercises learned in gym class eons ago and walk 3-4 miles a day, weather permitting. Be your own best advocate for your body. Kaye

Hi,
I have high risk osteoporosis. I took prolia for 2 shots. I am so sorry that I did! After the second shot I was in constant pain in my legs - worse when I laid down, my finger joint grew and my hair fell out - about 1 1/2" all around my face. Now I look like a witch! I told my endocrinologist I was stopping but wanted to know what would happen. He said without drugs I would have a 10% chance of a broken hip and a 25% chance of any broken bones in the next 10 years. I will take those chances. I now feel great - drug free except for calcium and vitamin D. I do a few exercises learned in gym class eons ago and walk 3-4 miles a day, weather permitting. Be your own best advocate for your body. Kaye

Hi,
I have high risk osteoporosis. I took prolia for 2 shots. I am so sorry that I did! After the second shot I was in constant pain in my legs - worse when I laid down, my finger joint grew and my hair fell out - about 1 1/2" all around my face. Now I look like a witch! I told my endocrinologist I was stopping but wanted to know what would happen. He said without drugs I would have a 10% chance of a broken hip and a 25% chance of any broken bones in the next 10 years. I will take those chances. I now feel great - drug free except for calcium and vitamin D. I do a few exercises learned in gym class eons ago and walk 3-4 miles a day, weather permitting. Be your own best advocate for your body. Kaye

You are exactly right, we must be our own advocates and make decisions on treatments after doing our own research. The medical community and pharma promote drug treatment for osteoporosis, but drugs or certain drugs might not be the best option for everyone. I recommend following reviews and experiences from those who are treating and well as not treating osteoporosis....they offer a wealth of first-hand information with their personal experiences.

Breast to hear this worked for you. I would also be interested in what your Dexa scores were if you are willing to share. Thanks

In reply to @ZeeGee. Thx! As it turned out, somehow my iPad kicked me out of my settings with connect. I had to re-establish my post notifications and now I am receiving them again! Yea!

@migizii - what settings did you have to apply to get your Connect mail back? I’m on iPad too.