Hi Abby:
I am a LBD with atypical PArknsons (many times both ae present) and have done a lot of research on LBD.

A good place to start is the Lewy Body Association website.
http://Www.Lbda.org

It is a very good launching point for research and info. There are links to a lot of great info and some external sites to give a broader picture.

You can also look at is the National Institute on Aging article:
https://www.nia.nih.gov/health/what-lewy-body-dementia-causes-symptoms-and-treatments
Of course : https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025

Another great resource is to find some local programs for people with dementia and those caring for them. These points of view can really help to understand the disease from a personal standpoint.

You have to be a bit careful but you can get some good perspective from people with LDB, caregivers and what they experience in their daily lives.

Lastly - if you can find someone with LBD that can answer your questions you get a first hand perspective. I call it the “from in here” view.

I’’m not sure how much good I can do - but I am always happy to try answer a question.

Peace
Larry H.
“From In Here”