Peripheral Neuropathy and benign fasciculation syndrome.

I'm glad I found this thread. It was beginning to feel like I was the first person in the history of the world to have this combination of symptoms. I've seen 3 neurologists who just throw their hands up and save lets give it some time and see if it gets better. I was diagnosed with SFN a year ago after skin biopsy which was below the threshold at the hip only. My symptoms were only numbness in my hands and a tingling sensation in my ear, and some nerve pain in my toes. Then one month ago I developed widespread fasciculations in seemingly every muscle in my body, constantly sweaty hands and feet, dry mouth, muscles that fatigue very easily, cramps in hands and feet, lightheadedness when standing or being on my feet for an extended period, and a drastic progression of the numbness and tingling associated with the SFN in my arms and legs and face especially at night. I thought for sure I have ALS and I am still worried about it, but an EMG last week was normal. I have not heard of any link between SFN and Fasciculations until reading this thread. So far, we have not been able to find any cause for my SFN. My only flagged results in bloodwork are slightly low copper, slightly low C3 complement, and slightly elevated bilirubin.

I'm glad I found this thread. It was beginning to feel like I was the first person in the history of the world to have this combination of symptoms. I've seen 3 neurologists who just throw their hands up and save lets give it some time and see if it gets better. I was diagnosed with SFN a year ago after skin biopsy which was below the threshold at the hip only. My symptoms were only numbness in my hands and a tingling sensation in my ear, and some nerve pain in my toes. Then one month ago I developed widespread fasciculations in seemingly every muscle in my body, constantly sweaty hands and feet, dry mouth, muscles that fatigue very easily, cramps in hands and feet, lightheadedness when standing or being on my feet for an extended period, and a drastic progression of the numbness and tingling associated with the SFN in my arms and legs and face especially at night. I thought for sure I have ALS and I am still worried about it, but an EMG last week was normal. I have not heard of any link between SFN and Fasciculations until reading this thread. So far, we have not been able to find any cause for my SFN. My only flagged results in bloodwork are slightly low copper, slightly low C3 complement, and slightly elevated bilirubin.

I'm glad I found this thread. It was beginning to feel like I was the first person in the history of the world to have this combination of symptoms. I've seen 3 neurologists who just throw their hands up and save lets give it some time and see if it gets better. I was diagnosed with SFN a year ago after skin biopsy which was below the threshold at the hip only. My symptoms were only numbness in my hands and a tingling sensation in my ear, and some nerve pain in my toes. Then one month ago I developed widespread fasciculations in seemingly every muscle in my body, constantly sweaty hands and feet, dry mouth, muscles that fatigue very easily, cramps in hands and feet, lightheadedness when standing or being on my feet for an extended period, and a drastic progression of the numbness and tingling associated with the SFN in my arms and legs and face especially at night. I thought for sure I have ALS and I am still worried about it, but an EMG last week was normal. I have not heard of any link between SFN and Fasciculations until reading this thread. So far, we have not been able to find any cause for my SFN. My only flagged results in bloodwork are slightly low copper, slightly low C3 complement, and slightly elevated bilirubin.

Oh yes sir, I stopped all vitamins and supplements with the exception of occasional zinc, selenium and magnesium in the appropriate quantities. These naturally help chelate mercury. Honestly, I’m pretty sketchy of any supplements now. I had no idea how toxic certain fish are( big eye, yellow fin , albacore tuna). I was eating this food in hopes to help with my autoimmune problems (alopecia areata) I believed the fatty acids would help my immune system and keep my hair from falling out. It was an easy and convenient lunch to eat daily. Unbeknownst to me, certain fish are highly toxic if eaten more then 1-2 servings a week. That coupled with amalgam fillings that leave you with a steady blood level of mercury regardless of what you eat. I was on the paleo style diet, probiotics and such to heal my digestive system which put a heavy load of oxylates in my system (also known to cause neuropathy per my research). The megavitamin supplements just added fuel to the neuropathy fire. Then the whopper IV b6/EDTA. Synthetic b6 being known to cause neuropathy and edta known to cause numbness. I basically starved/fasted for months loosing 20 pounds and slowly reintroducing foods. It also appears I am b6 sensitive now. We as modern day humans do not need to supplement B6 if we have a well rounded diet and are healthy.

Very intending to find this, about keto and oxylates. I am still awaiting diagnosis but have fasciculations galore, weakness, and SFN if not autonomic as well. Hm. Thank you

Very intending to find this, about keto and oxylates. I am still awaiting diagnosis but have fasciculations galore, weakness, and SFN if not autonomic as well. Hm. Thank you

What about keto??

what is keto ????? never heard of it...

@margaretob and @joannemm30809 - Keto is basically a low carb high fat diet.

The Ketogenic Diet: A Detailed Beginner’s Guide to Keto: https://www.healthline.com/nutrition/ketogenic-diet-101

There's also a discussion on the topic if you want to learn what others have shared.
-- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/