Living with Neuropathy - Welcome to the group

Good evening @wwenerowicz and @mtborz .....you know...I also find medical terminology a bit hard for me to both remember and understand. I try to keep things simple. Anyway.....I used a lidocaine compound for several years. My neurologist kept making changes to keep up with the pain progression and tingle tangles in my hands and arms. I have SFN (small fiber neuropathy) and it has its challenges.

I now use medical cannabis tinctures and topicals for pain control. Yet, I do have a colleague @johnbishop who has SFN with no pain. Perhaps he will be able to share with you the types of medications he uses for his symptoms.

May you and your husband be free of suffering and the causes of suffering.
Chris

Hi Merce @mtborz, I know it must be difficult for you and your husband having to deal with side effects of the treatment. I have some numbness in my fingers and feet due to neuropathy and so for haven't found any real help from OTC topicals. I do think it's important to keep your hands and feet moisturized with a good skin lotion which makes sense because the peripheral nerves being affected are close to the skin.

I think what @rwinney suggested may be something to reach out to your husband's care team and see if it could be an option for him to try for his three remaining chemo treatments. Here's an article from 2017 on the topic -- Cold therapy may be effective at controlling cancer treatment side effects: https://www.sciencedaily.com/releases/2017/10/171012111440.htm

I also found some information on supplements which may be helpful and you might want to discuss them with your husband's care team --- "Another study found that vitamin E was effectively and safely protected against neuropathy in cancer patients treated with taxol [10]. Most side..." --- Comparison of the Effects of Omega 3 and Vitamin E on Palcitaxel-Induced Peripheral Neuropathy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6236056/

Hoping you find something that provides him some relief.

John, I'm new and looking for a topic list, help.

@pusher, By looking for a topic list do you mean a list of the different health groups and the list of discussions under each group? Here's a list of the discussions in the Neuropathy group if that's what you want - https://connect.mayoclinic.org/group/neuropathy/. If you are looking for a different group, just scroll all the way to the top and click the Groups link in the top link that says Groups / Neuropathy / Living with Neuropathy - Welcome to the group

Is that what you are looking for?

Yes, got it now, thanks.

Hi my name is Rachel/This is my second message.Sorry need to wait till my son can take my picture.I have had neuropathy about ten years after having fusion and laminectomy on my back.I am 93 years old and a year ago the Orthopedic dr was increased the dosage of Gabapentin after a bulging disc was removed from my lower back.The surgery was successful but a few months later my leg, back and sciatic pain increased .The Orthopedic dr suggested I increase my med to 1600 dose.I had lots of side effects from the Gabapentin .I decided to see a Neurologist after reading some of the commends .I am glad I did see him.He suggested I get blood work to check on my level of Gabapetin and B12 levels in my blood .I am reducing the Gabapentin to 900mg.The dr obtain all my health records and feels my pains are due to Neuropathy but also sciatic nerve. I started taking CBD in liquid form at bed time and divided my Gabapentin with 600 dose at bed time.Not sure the CBD helps .I am sleeping better and reducing gradually the Gabapentin seems to improve my balance and feel less tired during the day.Bought the Bombas slippers but not safe walking on my hard wood floor.Sitting or standing is most painful resting on my sofa is best .I have symptoms during the day and at night in bed. I have adjusted to the symptoms as well as posible but it is not easy.Always glad to hear how others handle the neuropathy pain.Thanks for the group.

I am impressed by your response. For over 6 months and over 6 doctors not a one has mentioned POTS or even come close even though I told them that my bp goes up as well as hrwhen I stand even from a sitting position. We have tested this at least 10 times. The dizziness, lightheadedness persists as long as I am standing. I also have lumbar stenosis, fairly advanced at L3-4-5 which obviates surgery. This condition keeps me bent over when I stand and I have to use 2 ski poles for support when I stand. I had a sailing buddy who had a similar fate and. Ended his life due to the pain and disability.
I had a follow-up MRI with a neurologist today who could not offer me more than A cortisone shot in the spine and physical therapy . I am very disappointed. I am 79 and until 7 months ago enjoyed small boat sailing and racing as well as rowing my rowing shell.
I will definitely follow up on your suggestion.
BTW-I was a research pharmacologist back in the 70’s and got into management at Ciba. Pharm and retired from GlaxoSmithKline 15 years ago
Thanks again . Maybe the Mayo is in my future.

I agree. I just got my blood tested today. I'm afraid to put anything new in my body since the Emgality caused me chest pain and the Gabapentin caused me a racing heart beat and even more chest pain. I am in so much pain that I have taken extra pain medication. Its in my legs and arms and not just at night, but all day. I can't stand the pain and now my chest is hurting with all the walking. I don't know what to do.

Have you tried a heating pad? I hope you find relief soon!

legs crippling up, no feeling in feet, charley horses frequently. WHAT CAN I TAKE???? had bloodwork done and diabetes is under control with INSULIN and GLUCOPHAGE twice morning and evening...M.