Thanks Molly, I joined The Foundation in 2016 when I was first diagnosed with cutaneous Polyarteritis Nodosa.
CPAN is extremely rare. I was treated by my dermatologist who had me on prednisone for almost 8 months.
I went into remission until this year. Now the CPAN has changed to PAN which is also rare.
Just like almost everyone else who has a rare disease I’ve been frustrated by the medical community’s lack of awareness regarding Polyarteritis Nodosa.
I would like to meet up with someone else who has CPAN or PAN. So far I have not.