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Sudden low blood oxygen levels: Anyone else have Vasculitis?

Blood Cancers & Disorders | Last Active: Feb 21 8:18pm | Replies (29)
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@siosal

Hi
I have ANCA vasculitis.
Other than being tired or sleepy, I have no symptoms ever. It was discovered about two years ago when I came out of remission for CKD. No symptoms there either. I read of patients having such a difficult time with it. I am on rituxan. 2 yrs of it. I am in remission of CKD and ANCA.
I have ever known anyone with ANCA so I am happy there is some activity here.
I have never had oxygen problem. Last week my oxygen was 100%. That’s a first. Also my lungs do not seem to be affected by my autoimmune conditions.

I hope there is a quick and simple answer for you.

Beth

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Replies to "Hi I have ANCA vasculitis. Other than being tired or sleepy, I have no symptoms ever...."
SusanEllen66 | @SusanEllen66 | Feb 19, 2022

Hi Beth
My Vasculitis is Polyarteritis Nodosa. It’s a rare version of Vasculitis (about 4 cases in 100,000).
I have never met or had any contact with someone else who has this.
PAN generally spares the lungs so this is a mystery. It probably is unrelated…

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