Prostate and Bladder Issues: What to do?
I am a 68, nearly 69, year old man that has had bladder issues for years. I had green light prostate surgery 8 yrs. ago which helped for a while. Now, my prostate has had some regrowth and I have developed several bladder diverticulum. I have had just about every bladder test possible. I also have some incontinence issues, and manage by wearing diapers when necessary. I'm ok with that. My urologist had me on a combination of tamsulosin and finastride, but have not realized much of a difference. I'm a bit afraid of some of those drugs because I have read that they could mask the development of a more serious prostate cancer.
My urologist suggests that I may be a candidate for surgery, but what kind? Turp or total removal of the prostate? I have also read that turp sometimes needs to be repeated. Don't want that to happen either. What to do?
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Part 4
kayak had a list of questions in his earlier post. I will answer them in regard to my experience noting that my surgery was BipolEP versus HoLEP.
Q: How long were you in the hospital following HOLEP?
A: About 24 hours
Q: How long did you have to have a catheter in for?
A: Just under 24 hours
Q: Was recovery painful?
A: Not at all. Surprisingly little pain with this procedure.
Q: Did you experience incontinence!
A: No. Just a little red ooze especially in the first week. I used Depend for Men light shields in briefs for the flight home and that handled it well. That subsided within 2 weeks and I don't use the shields any longer.
Q: Was there significant improvement in urination?
A: OMG YES! <big smile!>
Q: Was it difficult to get out and about within the first three months?
A: No problem at all. I am 6 weeks post surgery and completely back to normal activities.
Q: Did you lose the ability to have an erection?
A: No. All good in that department. <another big smile>
Q: Did you lose the ability to ejaculate?
A: Yes. Well, as paul55 stated in an earlier post, I have retrograde ejaculations. The semen does not exit your penis as it normally would. My doctor advised me of this before the surgery. On this point... at this early stage after the surgery, I feel like it does slightly diminish some of the physical satisfaction of sex. I do feel the pleasure of the orgasm, but it's kind of difficult to explain. I guess it is sort of like when you feel like you are going to sneeze but then you don't, if that makes sense. I would like to hear other men's opinions on this point. Please post them in this thread.
Whew! Sorry this got so long. I hope I didn't put you all to sleep. I typed it in a word document and then copy/pasted it in here. Apparently it was too big for one post so I broke it up into smaller parts. If anything I wrote spurred a question, please feel free to ask. If anyone with medical expertise finds anything I wrote to be wrong, please correct me!
WOW. "Be careful what you ask for." I never expected such a thorough explanation of the BipolEP procedure. This is SO complete. Thank you, @jetjock. You outperformed. This explanation is going into my file of BPH treatments for re-reading prior to my approaching appointment with my Urologist. I suspect he will have a set of low-invasive procedures available, and I want to have him address the issues of your story.
I do have one question about retrograde ejaculation. Assuming the spouse is of a similar age as we and procreation is not an issue, are there any drawbacks to retrograde ejaculation other than a slightly diminished physical satisfaction?
How’s your recovery going? Are you having any issues at all following the procedure? We’re you in and out on the same day?
Retrograde ejaculation is not harmful according to my doctor. Here is a link to a Mayo Clinic article about it.
https://www.mayoclinic.org/diseases-conditions/retrograde-ejaculation/symptoms-causes/syc-20354890
I am fully recovered and have been for several weeks now. My doctor’s instructions were light activities and no sex for 2 weeks and then resume normal activities.
I have no issues other than the retrograde ejaculation that was explained to me before the surgery. It is a minor issue and worth it to be able to pee again.
I spent one night in the hospital.
I'll briefly describe my with experience with HoLEP and then make a general observation.
First, I am 80 years old. Summer of 2021 I had several episodes of 'acute urinary retention,' relieved by going to Emergency and getting a Foley catheter. My local urologist briefly gave me the menu of options, tilted the scale toward TURP, (which he does) and said he could see me again in nine weeks. I had another episode of acute urinary retention within days. He didn't see me; I went to Emergency for a Foley catheter. I did some online reading on treatments. I also sought a second opinion from the Mayo Clinic, Rochester. There I saw somone for over an hour to discuss various treatments. I decided to try the 'least invasive' path—tamsulosin (which I was already taking) and dutasteride—for six months and if my symptoms weren't better seek Rezum. After a week or so I could urinate less and less and I sought a visit with a Mayo surgeon who does Rezum. There was a period of 4-6 weeks when I had a very painful penis and couldn't sleep because of small, painful urinations ~ every half hour/day. Of the three docs I consulted during this period (my local family doc, my local urologist, the Mayo guy I had met earlier), the Mayo guy was the most helpful. It was all done via email. We had many back and forths. He prescribed what helped me the most. Just before my visit with a Mayo surgeon who does Rezum, Mayo had me do several tests from which it was seen that I was not a candidate for Rezum—135 g prostate, 'advanced' blockage. HoLEP seemed like a likely procedure. I got an appointment with the Mayo (Minnesota) surgeon who does those.
I I had the procedure Friday, November 12. No pain. In at 9 am, out at 4 pm. I had a Foley catheter over the weekend. Monday the catheter was removed. Great urine stream. I was not to lift heavy objects nor ride a bike nor engage in sexual intercourse for six weeks (maybe resumption of sexual intercouse could come sooner than six weeks—don't remember). Other than that life was normal.
There was some incontinence at the beginning of recovery, for which I used ~ 4 Depends/day. It is now three months since surgery. I can voluntarily control releasing a urine stream, but I do leak urine between times of release. I adjust to that with folded toilet paper issue, which I discard and replace a number of times/day. This trick allows me to use only one Depends/day now. I believe Mayo's guidance is that incontinence usually diminishes over time.
Erection and ejaculation are as another HoLEP patient as described—satisfactory.
In sum my HoLEP experience has been entirely positve.
Second, a general observation: do not tell your surgeon what procedure to use. Are you the expert and s/he the mindless workman? In my online research I found surgeons with great credentials strongly recommending a range of procedures. I really didn't have a basis for choosing one. However, I read many times that TURP used to be the gold standard, but...I also read that it takes quite a while to learn how to HoLEP. That presumably explains why there are relatively few surgeons who do it. My local urologist does not do HoLEP; and he didn't see me in a timely way after my first episode of acute urinary retention. So I lost a degree of trust in his words. On the other hand Mayo saw me in a timely manner, gave me lots of email consultation, frankly said they (at least the guy I was working with) 'didn't believe' in one of the new procedures. The Mayo surgeon I saw to discuss doing HoLEP is experienced, seemed fully competent, answered all my questions, including what other prostate surguries he does, why he was recommending HoLEP for me, etc. In my case, my prostate was too large for Rezum, TURP (which he also does) was ... He advised a procedure to fit my case; and Mayo has surgeons who do a variety of procedures.
My experience with Mayo has been really good. This is the kind of system you want to be in.
So, to conclude this 'general comment,' I would advise you to research all the procedures, but not go in asking for a particular one. Let someone who are inclined to trust advise a procedure for your case. If it doesn't pass the 'smell test,' based on your research, you are free to keep looking. And the system is important as well as the surgeon.
@kayak461 and @rfherald, wow, your questions really garnered experiences, answers and feedback you really can't get anywhere else than through the experiences of fellow patients like @paul55 @bill5letsfixthis @jetjock @bruce1sparkle.
Have the responses helped advance your decision making? What next?
My plan is to proceed with the appointment I have scheduled at the Mayo in Jax in late March. I’m going in open minded and ready to hear what the Urologist has to say about my condition, listen to his recommendation(s), and then act upon the recommendation. Based on the feedback from wonderful guys willing to take time to write about their own experience, I feel more at ease and less panicked about what is around the corner for me. So this Connect Group has helped me more than I could have hoped. The response form individuals was beyond my expectation and I couldn’t be more grateful for the exchange of information with this group. I will do my best to follow up with everyone as to what I experiences I have and the path I follow. I am sincerely appreciative of the people in this Connect group and I’m really glad I decided to ask a few questions.
Well said @kayak461 . When I first heard of BPH, I had a tremendous aversion to the pain of a distended bladder requiring emergency catheterization. Fortunately a friend pointed me to Connect and I found a wealth of information and experience from those who have experienced greater problems than catheterization! And they made it sound not quite so scary. This connect group is like a men's club where we are all experiencing the same problems with aging and are willing to share their good and bad experiences to help others along the way.
I am a little earlier in the BPH journey than you. I still have a couple of tests before my Urologist makes a diagnosis and recommendation. But I have gathered enough information that I will be able to question him on the several options available. A little knowledge can help relieve the stress and fears that the unknown fosters. Thank you all.
Hello ch665296f….I am in a similar situation, I’ll be 70 in two months, I have been told by 3 Urologists that I must have my prostate removed. I am going to see the Mayo Clinic Urology Department on Friday…and will let you know what the results are. I will no doubt choose a direction in 48 hours. I’ll come back to this group to let everyone know what it looks like for me! This is a great group of guys in the loop….glad to see you her too!