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@gillysmom

I can feed myself with prepared foods, which means navigating a flight of stairs. I have to hold on because I am still weak from the aftereffects of vertigo. My most pressing issue was transferring my Hizentra gamma globulin infusions from home in Oregon to son's home in VA. That meant finding a new immunologist and getting it all processed and activated. I had products for a couple of months to tide me over, and just managed to activate all as my stuff was running out. With all the problems, I just tackle one at a time. If the Hizentra didn't work out, I would die, so that is the priority. I;m still working out the small stuff with that. Next two tasks are finding a cardiologist and rheumatologist. Son has driven me to appointments with new immunologist, but so far only getting the stuff going and no real progress. My sickness and weakness makes going forward difficult and slow. Son works hard as home as CFO for small company, so I ask as little of him as possible. .Before the Covid vax, I was independent and on an organic diet and seeking solutions for many physical problems, but medical support in my home town was less than third world poor. Was virtually on my own for years.

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Replies to "I can feed myself with prepared foods, which means navigating a flight of stairs. I have..."

@gillysmom I’m so glad you’re able to be with your son. I hope you’re near one of the big hospitals, like the University of Virginia. Or, if you’re near Washington DC, there are also great hospitals. You should be able to get some referrals to cardiologists and rheumatologists. I wish you lots of good luck and please stay in touch with me!