undiagnosed low back / right Sacroilliac Pain

Posted by BethCIowa @bethciowa, Dec 6, 2011

Severe low back pain, last week I went to a Neurosurgeon, had an EMG, he said I do not have sciatoic. I've been in this battle off and on since 08. My bodied was jarred down onto a snowmobile seat really hard. Since then, I've had pain from standing, walking, and sitting. The last 2 months I have been in constant pain. I limp due to the right side of my low back pain. I've had spinal manipulations, epidural steroid injections, MRIs, low back xrays. I've been to 2 family drs, 2 pain specialist, an orthopedic surgeon and last week the neurosurgeon. I pointed to him the place in my back where the pain is the worst (when I touch it, it immediately makes me nauses) he said that is your SI joint your hip… going this afternoon for xrays… from what I've read, xrays don't show SI joint issues… I'm struggling with keeping my chin up … pain seems to distort my thoughts… I'm just not myself because of it. I sence some think that I'm not being honest or something about this nightmare I'm living. I'm a Christian, I normally wouldn't wish bad on others, why do I wish they could have this pain for a couple of months…

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Hello. I understand all your pain. I am experiencing that too. I have pain in my foot after walking 15 minutes sitting in my buttocks and i feel my hips are popping out pain all over I have diagnosed with chronic pain . E.R. Diagnose me Anxiety, Depression, Chest pain, i cant breath sometimes i need oxygen, mine is more on the left side my thigh on the left hurt I had a test for EMG that test was torture but I made it I have pain every morning all over my body.headaches cold coughing bad I am fatigue all the time .i went to the best orthopedic specialist maybe there's something broke in my back he did an x-ray on me .why I'm having this pain questions myself whats wrong with me? I do really need to find out right diagnose for me so i know i can best handle myself i have ups and downs setbacks,battling this illness crying sometimes, become numb , cold, i feel that nobody is listening, until i ask for many peoples help reading more info and books from the library this support groups is best for me knowledge is power for our medical problems because I do like to get 2nd opinion because I am in denial and I have trusts issues .My best orthopedic said there's nothing He can do on my side. So I went to neurologist he diagnose me with athritis, fibromayalgia, radiculopathy and sleep issues, and others then my primary doctor diagnose me with radiculopathy,high blood pressure and fibromayalgia . I ask myself now what are you going to do ? Do I hold on or do i give up? I went to psychologist and went to talk therapist soon I'm going to a psychiatry for bulimic issues and now I'm scared for another MRI .I had it in 2010 not fun for me. I Keep telling my self on and on I have to be strong for my children have to loose weight it is a battle for me everyday I pray to god take care all of you I know there is hope out there we have to strive finding a way to get out to this chronic illness . Good afternoon . Have a great day .

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@ltmom

hopefully you can get better answers at Mayo. Chronic pain can take you down a lonely path. But... there is hope and others out here to heIp you along this path. I to have this terrible chronic pain and am hoping for relief soon. I also am a Christian and like you, don't wish my pain on others, but at times I feel others might understand better if they had a day or two in our steps

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Thank you for your reply. I am doing better, not great. I'm going to aquatic therapy now, and did physical therapy for a month before the aquatic. I'm still on pain need need, a new one it helps but doesn't make me sleepy. I'm back to work part time. My boss/job have been very good to me, for that I am grateful. Trying to lose weight, and remain posive, counting my blessings...

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@anon27855854

Hello. I understand all your pain. I am experiencing that too. I have pain in my foot after walking 15 minutes sitting in my buttocks and i feel my hips are popping out pain all over I have diagnosed with chronic pain . E.R. Diagnose me Anxiety, Depression, Chest pain, i cant breath sometimes i need oxygen, mine is more on the left side my thigh on the left hurt I had a test for EMG that test was torture but I made it I have pain every morning all over my body.headaches cold coughing bad I am fatigue all the time .i went to the best orthopedic specialist maybe there's something broke in my back he did an x-ray on me .why I'm having this pain questions myself whats wrong with me? I do really need to find out right diagnose for me so i know i can best handle myself i have ups and downs setbacks,battling this illness crying sometimes, become numb , cold, i feel that nobody is listening, until i ask for many peoples help reading more info and books from the library this support groups is best for me knowledge is power for our medical problems because I do like to get 2nd opinion because I am in denial and I have trusts issues .My best orthopedic said there's nothing He can do on my side. So I went to neurologist he diagnose me with athritis, fibromayalgia, radiculopathy and sleep issues, and others then my primary doctor diagnose me with radiculopathy,high blood pressure and fibromayalgia . I ask myself now what are you going to do ? Do I hold on or do i give up? I went to psychologist and went to talk therapist soon I'm going to a psychiatry for bulimic issues and now I'm scared for another MRI .I had it in 2010 not fun for me. I Keep telling my self on and on I have to be strong for my children have to loose weight it is a battle for me everyday I pray to god take care all of you I know there is hope out there we have to strive finding a way to get out to this chronic illness . Good afternoon . Have a great day .

Jump to this post

Thank you for your reply. I am doing better, not great. I'm going to aquatic therapy now, and did physical therapy for a month before the aquatic. I'm still on pain need need, a new one it helps but doesn't make me sleepy. I'm back to work part time. My boss/job have been very good to me, for that I am grateful. Trying to lose weight, and remain posive, counting my blessings...

REPLY
@anon27855854

Hello. I understand all your pain. I am experiencing that too. I have pain in my foot after walking 15 minutes sitting in my buttocks and i feel my hips are popping out pain all over I have diagnosed with chronic pain . E.R. Diagnose me Anxiety, Depression, Chest pain, i cant breath sometimes i need oxygen, mine is more on the left side my thigh on the left hurt I had a test for EMG that test was torture but I made it I have pain every morning all over my body.headaches cold coughing bad I am fatigue all the time .i went to the best orthopedic specialist maybe there's something broke in my back he did an x-ray on me .why I'm having this pain questions myself whats wrong with me? I do really need to find out right diagnose for me so i know i can best handle myself i have ups and downs setbacks,battling this illness crying sometimes, become numb , cold, i feel that nobody is listening, until i ask for many peoples help reading more info and books from the library this support groups is best for me knowledge is power for our medical problems because I do like to get 2nd opinion because I am in denial and I have trusts issues .My best orthopedic said there's nothing He can do on my side. So I went to neurologist he diagnose me with athritis, fibromayalgia, radiculopathy and sleep issues, and others then my primary doctor diagnose me with radiculopathy,high blood pressure and fibromayalgia . I ask myself now what are you going to do ? Do I hold on or do i give up? I went to psychologist and went to talk therapist soon I'm going to a psychiatry for bulimic issues and now I'm scared for another MRI .I had it in 2010 not fun for me. I Keep telling my self on and on I have to be strong for my children have to loose weight it is a battle for me everyday I pray to god take care all of you I know there is hope out there we have to strive finding a way to get out to this chronic illness . Good afternoon . Have a great day .

Jump to this post

Today I feel good. I didn't go to therapy today, I was exhausted so I took a nap. My hip is feeling better today, I didn't have pain in my thigh last night which was awesome, I slept well. Prayer and blessing to all those living with pain.......

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I am sorry to read of your misfortune. I don't know of any advice off-hand that might bring you relief, but if I come across any I will be sure to share it with you.

In the meantime, you'll be in my prayers, and I sincerely hope you're able to find relief sooner rather than later.

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@petere

I am sorry to read of your misfortune. I don't know of any advice off-hand that might bring you relief, but if I come across any I will be sure to share it with you.

In the meantime, you'll be in my prayers, and I sincerely hope you're able to find relief sooner rather than later.

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Thank you Peter!

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Well, today I am in pain, for about 45 minutes it was severe. Im laying down now for about an hour or so... pain @ L3~L5 level the right side of my spine to about 2 inches to the right. Then down my right buttocks down my right thigh, a throbbing piercing pain @ times.....the front of my right hip bone is extremely sensitive. About a week ago I had a burning pain on the right side of my right thigh, a few inches above the knee Going to my Dr tomorrow and to Orthopedic Dr next Wednesday.... It seems like an incredibly long time to wait, hello ice packs and sweatpants. Ugh!!!

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In reply to @bethciowa "Sciatica*" + (show)
@bethciowa

Hey I have had issues with low back pain from car accident in s1 l 5 area and tried just about everything, tens chiropractic, Accupuncture, massage, and found that exercise riding recumbent bike helped out some, but inversion therapy relieved the pain substantially over time allowing space between the joints and relaxing tight muscles in lower back hope this helps!

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In reply to @bethciowa "Sciatica*" + (show)
@bethciowa

Thank you!!! I have a recumbent exercise bike, I've been afraid to do it.... I'll check with the physical therapist..... The specialist said its iliopsos.~?sp tendonitis I am doing better but not great... Thanks again!

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In reply to @bethciowa "Sciatica*" + (show)
@bethciowa

Inversion helped me the most, I believe it allowed space between joints for blood to flow more freely to heal and relieve the pain and tightness in the lower region

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