← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?

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@beverlysherman

BMB in November 2021. With low-grade B-cell lymphoproliferative disorder. With potential marginal zone lymphoma. It seems challenging to arrive at a diagnosis.
I am a bit anemic, tired and cold most of the time.

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Replies to "BMB in November 2021. With low-grade B-cell lymphoproliferative disorder. With potential marginal zone lymphoma. It seems..."

One of the great problems of our time is that modern medical practice has not yet met the full meaning of having multiple diseases and disorders. I have listed many of mine on these pages. I am pretty sure that I have at least a couple thousand diseases, phenotypes, and disorders that may be messing with my life, especially through all the protein changes and mutations and "unknown significances". Anyway, the search for the gen and its effects are the core of truth in modern medicine. If you have not had one of the better labs, such as Nebula or Sequencing .com do an analysis, do it. The price is well worth it, and you will learn great things.
oldkarl

I too have been diagnosed with Monoclonal low grade B cell Lymphoma/Leukemia - Lymphoproliferative Disorder. My labs are not great but stable. No symptoms as of yet. Are you receiving any treatment? I feel tired and sometimes feel hot with a very light sweat over my body especially my forehead. I have also been diagnosed with Hypothyroidism and have to have further labs done for that. No treatment yet either. Would love to hear back from you.

Hi Beverly, my daughter was told she will now be treated for the same thing, after being treated for Multi Myeloma these last 6 wks. Dr now thinks it is Lympho-plasmocytic. She is anemic, tired and cold all the time too. They are going to change her meds. For now they are giving her a break from them. Protein is high and kidney he has concerns. As her mom, I don't know what to expect next. I hope to hear more from friends on this grp. Everyone has been great!