← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?

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@colleenyoung

Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be unsettling to say the least. It's not an uncommon approach. I actually prefer the term "active surveillance" which sounds more attentive than watch and wait.

As you may know lymphoplasmacytic lymphoma (LPL) is sometimes called Waldenström’s macroglobulinemia. I moved your question to this existing discussion where @pysullivan asked the very same question and got the conversation started. See here:
- Waldenstrom macroglobulinemia: What to expect during watch & wait? https://connect.mayoclinic.org/discussion/waldenstrom/

In this discussion, you can connect with others with the same diagnosis like @dcp45 @66andcounting @puffwithfluff @jam5 @jproctor @deljr @connie72 @ejrquast.

Beverly, you mention that the diagnosis is new, but that lymphocytes have been changing since 2017. So you've been on watch and wait since 2017 really, right? What symptoms are you experiencing now? What led to the diagnosis?

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Replies to "Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be..."

BMB in November 2021. With low-grade B-cell lymphoproliferative disorder. With potential marginal zone lymphoma. It seems challenging to arrive at a diagnosis.
I am a bit anemic, tired and cold most of the time.