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Waldenstrom macroglobulinemia: What to expect during watch & wait?
Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)Comment receiving replies
Lymphoplasmacytic lymphoma
This is a new diagnosis for me. But lymphocytes changes began in 2017. What can I expect to happen during this watch and wait period. I am stage IV
Replies to "Lymphoplasmacytic lymphoma This is a new diagnosis for me. But lymphocytes changes began in 2017. What..."
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Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be unsettling to say the least. It's not an uncommon approach. I actually prefer the term "active surveillance" which sounds more attentive than watch and wait.
As you may know lymphoplasmacytic lymphoma (LPL) is sometimes called Waldenström’s macroglobulinemia. I moved your question to this existing discussion where @pysullivan asked the very same question and got the conversation started. See here:
- Waldenstrom macroglobulinemia: What to expect during watch & wait? https://connect.mayoclinic.org/discussion/waldenstrom/
In this discussion, you can connect with others with the same diagnosis like @dcp45 @66andcounting @puffwithfluff @jam5 @jproctor @deljr @connie72 @ejrquast.
Beverly, you mention that the diagnosis is new, but that lymphocytes have been changing since 2017. So you've been on watch and wait since 2017 really, right? What symptoms are you experiencing now? What led to the diagnosis?