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Alpha-1 Antitrypsin Deficiency - just been diagnosed

Lung Health | Last Active: Oct 11 1:10pm | Replies (53)

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@discerning1

I've just been diagnosed with this genetic defect--which certainly explains my situation.
Is there a discussion group here (or elsewhere) for people in the same boat?

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Replies to "I've just been diagnosed with this genetic defect--which certainly explains my situation. Is there a discussion..."

Hi Discerning, I moved your post to this existing discussion group so you can meeting others living with Alpha-1 Antitrypsin Deficiency, like @nancyjac @sakota @windwalker @marty1996 @lindayoungquist and others.

You may also be interested in these related discussions:
- COPD: Is it genetic? alpha-1 antitrypsin deficiency https://connect.mayoclinic.org/discussion/copd-is-it-genetic/
- Alpha-1 Antitrypsin Deficiency: Is it considered autoimmune? https://connect.mayoclinic.org/discussion/alpha-1/

How did you discover that you have this genetic deficiency? How does it affect your lung health?

Are you MZ or ZZ? What is your Alpha 1 level?