1. < Lung Health

Idiopathic Pulmonary Fibrosis and Hoarse Voice

Posted by frane1939 @frane1939, Dec 31, 2018

I am curious about the hoarseness my husband is having. It seems to be getting worse and at times, it is difficult for me to understand him when he speaks. I am wondering if others with this disease are having the same issues; and, if so, what they are doing if anything about it.

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penlee | @penlee | Jan 1, 2019

I experience hoarseness on and off. Sipping Traditional Medicinals herbal teas - Throat Coat and Breathe Easy I find helpful.

REPLY
1 reply
Merry, Alumni Mentor | @merpreb | Jan 1, 2019

@frane1939 - Hello! Is your husband's doctor aware that his hoarseness has gotten so severe that you can't understand him at times? Perhaps it's more scar tissue? Has he been ill lately with a cold?

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frane1939 | @frane1939 | Jan 1, 2019

He has not had a cold; and, yes and no about the doctor. I told him in the past about the hoarseness being so bad at times, not only myself, but others are having issues understanding him. He will be seeing his doctor this month and I will mention it again. In the past, when I mentioned it, he sent him to the ENT doctor to determine if there were any nodules which may be affecting the hoarseness. It was determined by the ENT that it was his fibrosis. Perhaps, it is time for another XRay.

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2 replies
Merry, Alumni Mentor | @merpreb | Jan 1, 2019
In reply to @frane1939 "He has not had a cold; and, yes and no about the doctor. I told him..." + (show)
@frane1939

He has not had a cold; and, yes and no about the doctor. I told him in the past about the hoarseness being so bad at times, not only myself, but others are having issues understanding him. He will be seeing his doctor this month and I will mention it again. In the past, when I mentioned it, he sent him to the ENT doctor to determine if there were any nodules which may be affecting the hoarseness. It was determined by the ENT that it was his fibrosis. Perhaps, it is time for another XRay.

Jump to this post

@frane1939 - Sounds like it might be time.
Meanwhile honey is good
Wish I could be more helpful.

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1 reply
frane1939 | @frane1939 | Jan 1, 2019
In reply to @penlee "I experience hoarseness on and off. Sipping Traditional Medicinals herbal teas - Throat Coat and Breathe..." + (show)
@penlee

I experience hoarseness on and off. Sipping Traditional Medicinals herbal teas - Throat Coat and Breathe Easy I find helpful.

Jump to this post

Thanks for the reminder. I had ordered the Breathe Easy a while ago when someone mentioned it on this site. I will have him try it.

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cloe001 | @cloe001 | Mar 9, 2019
In reply to @frane1939 "He has not had a cold; and, yes and no about the doctor. I told him..." + (show)
@frane1939

He has not had a cold; and, yes and no about the doctor. I told him in the past about the hoarseness being so bad at times, not only myself, but others are having issues understanding him. He will be seeing his doctor this month and I will mention it again. In the past, when I mentioned it, he sent him to the ENT doctor to determine if there were any nodules which may be affecting the hoarseness. It was determined by the ENT that it was his fibrosis. Perhaps, it is time for another XRay.

Jump to this post

I have trouble with on/off hoarseness & pulmonologist referred me to ENT. Was scoped & thank God they didn’t find anything. My pulmonologist ended up taking me off one of my inhalers & it helped a lot. Good luck! It’s hard when no one understands what you’re saying. But what is most frustrating is trying to try to pay bills with computer voice driven apps ie Sprint ATT. Takes a sense of humor for sure!!

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pansygirl | @pansygirl | Feb 8, 2022
In reply to @merpreb "@frane1939 - Sounds like it might be time. Meanwhile honey is good Wish I could be..." + (show)
@merpreb

@frane1939 - Sounds like it might be time.
Meanwhile honey is good
Wish I could be more helpful.

Jump to this post

I realize this was quite a while ago, but I am wondering...what do you mean "sounds like it might be time"?

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1 reply
Merry, Alumni Mentor | @merpreb | Feb 8, 2022
In reply to @pansygirl "I realize this was quite a while ago, but I am wondering...what do you mean "sounds..." + (show)
@pansygirl

I realize this was quite a while ago, but I am wondering...what do you mean "sounds like it might be time"?

Jump to this post

It could have been clearer, right? I meant it might be time to see the doctor.

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wbrown2819 | @wbrown2819 | May 8, 2022

This is late for the original poster but I thought I would add this. I use a combination of OTC Flonase and RX Azelastine nasal spray. It took longer for the initial severe hoarseness but cleared up the last bout in one day . Hope this works for others. (IPF diagnosed 2/21)

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 13, 2022
In reply to @wbrown2819 "This is late for the original poster but I thought I would add this. I use..." + (show)
@wbrown2819

This is late for the original poster but I thought I would add this. I use a combination of OTC Flonase and RX Azelastine nasal spray. It took longer for the initial severe hoarseness but cleared up the last bout in one day . Hope this works for others. (IPF diagnosed 2/21)

Jump to this post

Welcome, @wbrown2819. I see you've been living with IPF for just over a year now (or perhaps longer). How are you doing? What helps you cope with IPF?

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