High Factor VIII (8) Blood Clotting Disorder and Impacts to life/COVID

I’m 54 but I walk but I also mountain bike and ride once a week on a bmx track. Not the safest way to exercise with known cerebrovascular stenosis but I’m not just going to take it laying down. If I fall then I fell doing something I love. Thanks for your support, how about you?

See my blood test results
High factor 8 at 261 %
(That test comes even after being on blood thinners for 3 months which for me is concerning. See the doc again in a couple months.)
V factor negative
DVT has brought this diagnoses to me since there is no explanation as to why the DVT

Hi Dakotakid, when were you diagnosed? What treatment, if any, has been suggested?

Rebounding and riding bikes (mountain bike, fitness bike and bmx)

Hi All,

I think I may have promised an update some time ago regarding COVID19 vaccination yes or no?

Before I post further comment, this is regarding only my situation and I'm not suggesting or advocating it for anyone else.

That said, I recently had my annual appointment and I was finally able to discuss my personal history with my doctor. The decision was no vaccine. I take Xarelto for F8 and it is also part of the protocol that they use here for COVID19 patients. The other more important reason is because of my past medical history and a new thought that I may have had an adverse reaction to treatment for my injury a long time ago. So, out of an abundance of curiosity, we decided to test the Factor VIII activity again which hasn't been done for a long, long time.

My best to one and all!

I am wondering if taking the covid vaccine could bring about these symptoms rather than covid itself. I am seeing many side effects from the shots or boosters.

The possibility exists that the vaccines could produce blood clots as it's noted in the possibilities of adverse reactions as posted by some of the pharma companies that produce the vaccines. The notes on it are statistically very low as they have reported them to date but for those of us that have a propensity to clot due to a variety of blood disorders & medical conditions, it's super important that people do their own research and have that conversation with their hematologist.

I did end up getting COVID since my last post and it was flu-like symptoms for me including chills/fever, very slight cough, watery diarrhea, slightly swollen nodes. I didn't develop any problems with shortness of breath or blood clots so following the guidance of my personal doctors kept in good stead. I increased vitamin C and D intake. My biggest problem was making sure that I stayed hydrated and fatigue.

I was very fortunate that it was relatively mild in my case as the symptoms were mostly over by the middle of the 4th day. I just had annoying little cough after eating for a few weeks after that, although I was noticeably improving each day that I had it.

I will say that if you think that you have signs of a blood clot - shortness of breath, sudden swelling in a leg or arm, (for the ladies, menstrual cycle that is more "clotty" than normal), it's important to get seen by a doctor immediately and get in to see a hematologist as soon as possible.

I'll look around and see if there is anything that I can find to post.

Wow!! Omg I haven’t found anyone who also has the mutated factor VIII like me!! Mine was 184 lmao. Very high. It was apparently the reason I was declined to be a living kidney donor the end of last year.

I have just been diagnosed with high factor 8. At least I know now after having2 unexplained DVT’s in my left leg. Have to stay on blood thinners

I have high factor VII and high factor V. I have had covid 3 times. You can survive it. Interestingly, my first clotting issues happened immediately following my covid booster.