AFib - Question about blood thinners

Posted by dogmom1 @dogmom1, Jun 30, 2019

I am on Sotalol to control blood pressure and heart rate. It seems to be working but I am tired and week all the time. I thought with more movement and exercise, I'd feel better, but it hasn't helped. I was on Xarelto until I developed blood in my urine. Thought it might be a kidney problem, but when the Xarelto stopped, the blood also disappeared. Kidneys okay. Now, the doctor wants to put me on Eliquis. I'm truthfully really scared of it. The "Common" side effects include bleeding - in the stomach, intestines, brain, or eyes. I know also, that once on it, you shouldn't stop for fear of blood clots. I really don't want to be on any blood thinners. Still hoping for more natural solution. Anyone else have experience with this?

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Has anyone had more energy when they went off xeralyo and had watchman implanted?

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@lawsonsa

I have been on Eliquis for more than 5 years without side effects. 77 yr old male. Though I haven’t noticed any improvement in my tennis.

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Just serve underhanded

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@mikehuff

Just serve underhanded

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You mean there is another type of serve?

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@texas14

I have taken Sotalol 9 months to Control aFib and took propranolol for 40 yrs before switching. Beta blockers have reputation to cause fatigue. I do get tired mid afternoon & quick nap perks me back up. Otherwise, I have plenty energy. Regular exercise helps energy level normal. As for blood thinners, anyone w aFib must take them to prevent stroke. I have taken warfarin 10 years and no issues. Eliquis is preferred by my cardiologist but I had mitral repair and can’t take DOAC’s. No studies to date with valve issues to safely take Eliquis, etc. I have had no bleeding issues to date and have home monitor to check INR every 3 weeks. Hope my history helps calm your fears.

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I have had mitral valve repair and just switched to Eliquist because the clot in my heart is not going away! Should I be worried?

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@afibjan

I have had mitral valve repair and just switched to Eliquist because the clot in my heart is not going away! Should I be worried?

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I'm sure you are aware of the common concerns like bleeding; all blood thinners have them. Mine was an uncommon (rare but severe) side effect: muscle weakness in legs. Looking back, it began a few months after going on Eliquis; legs felt like they were "jelly". My Cardiologist kept me on it even after an Ablation that cured my Afib.

For more than 4 years I needed a wheelchair if I had to travel more than a few hundred yards.

My Chiropractor (of all people) made the connection. Neither my primary nor my Cardiologist had ever heard of that side effect.

With Cardiologists OK, went off Eliquis December 23, 2022 and a week later could walk the half mile to our mail station and back w/o a problem! Six weeks later, I'm walking 2-3 miles a day at a 2 - 2.5 miles an hour pace.

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@cmauncc1

I'm sure you are aware of the common concerns like bleeding; all blood thinners have them. Mine was an uncommon (rare but severe) side effect: muscle weakness in legs. Looking back, it began a few months after going on Eliquis; legs felt like they were "jelly". My Cardiologist kept me on it even after an Ablation that cured my Afib.

For more than 4 years I needed a wheelchair if I had to travel more than a few hundred yards.

My Chiropractor (of all people) made the connection. Neither my primary nor my Cardiologist had ever heard of that side effect.

With Cardiologists OK, went off Eliquis December 23, 2022 and a week later could walk the half mile to our mail station and back w/o a problem! Six weeks later, I'm walking 2-3 miles a day at a 2 - 2.5 miles an hour pace.

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Thank you for the input. All of it helps knowing I am not alone.

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I never heard of Xarelto causing stomach bleeding (aggravating preexisting bleeding, yes).
That's the reason people taking it are advised not to take ibuprofen (which can cause stomach bleeding).

Have you ever investigated why you might have stomach bleeding in the first place?

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I am turning 60 soon. My mom had a-fib (lived to 88). I had it off and on the last few years; then last year after the vaccine, I started getting a fib every other week. I ended up in ER. He prescribed metropolol and aspirin. I felt great. Then my cardio prescribed metropolol and Eliquis. I hate it. I am achy, swollen, joints hurt, depressed, fatigued, etc. ugh. My question is why do I have to take blood thinners if my afib is controlled and no longer occurring? Why can't I take aspirin. This is affecting my quality of life? Thank you. How do I find the risk of blood clots one v. the other?

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@flan

I am turning 60 soon. My mom had a-fib (lived to 88). I had it off and on the last few years; then last year after the vaccine, I started getting a fib every other week. I ended up in ER. He prescribed metropolol and aspirin. I felt great. Then my cardio prescribed metropolol and Eliquis. I hate it. I am achy, swollen, joints hurt, depressed, fatigued, etc. ugh. My question is why do I have to take blood thinners if my afib is controlled and no longer occurring? Why can't I take aspirin. This is affecting my quality of life? Thank you. How do I find the risk of blood clots one v. the other?

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I think MD's overprescribe blood thinners, and my cardiologist finally agreed. I have afib once a year or so, with heart rate 160-180, and always end up in ambulance. However I have declined blood thinners. I recently read that they have found short-term blood thinners for afib lasting more than 5.5 hours is better than long term blood thinners for those with infrequent afib. This has not yet been put into practice though. My last episode was 7 hours and they did an echocardiogram to check for clots in the heart. Aspirin is no longer recommended, both because it is not effective for this purpose and because of side effects. You can decline medications anytime you want to. If your afib is more frequent than mine, you could consider trying another anticoagulant.

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@windyshores

I think MD's overprescribe blood thinners, and my cardiologist finally agreed. I have afib once a year or so, with heart rate 160-180, and always end up in ambulance. However I have declined blood thinners. I recently read that they have found short-term blood thinners for afib lasting more than 5.5 hours is better than long term blood thinners for those with infrequent afib. This has not yet been put into practice though. My last episode was 7 hours and they did an echocardiogram to check for clots in the heart. Aspirin is no longer recommended, both because it is not effective for this purpose and because of side effects. You can decline medications anytime you want to. If your afib is more frequent than mine, you could consider trying another anticoagulant.

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Thank you so much for your reply. Could you point me to where you read that short term blood thinners is better than long term if you still have it? I have access to pub med, etc. and trying to do my own research. Also - to the others - My legs feel like jelly too and am having a hard time walking. This "cure" is worse than the disease. Good to know I am not alone though. I am looking to make a lifestyle change and looking into natural remedies....<} good luck everyone. Keep in touch.

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