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Liver transplant - Let's support each other
Transplants | Last Active: 18 hours ago | Replies (1601)Comment receiving replies
Hi Gaylene, my name is Bryan and I’m finishing up testing to hopefully get listed. We live in California but are planning on choosing Mayo Phoenix. Our coverage provides lodging at a place like the Residence Inn in Scottsdale but we are thinking about the option of an Airbnb so I’d be curious to know what you learn.
To everyone, hello! My MELD is at 26 right now and I have a few tests left but hoping based on what my transplant Doc says to get out there soon. We shall see. Regardless, I’m thankful to find this group to learn from. My Wife is a medical professional so she helps me understand the numbers and tests, but the actual experiences from all of you are a found blessing. So thank you.
Replies to "Hi Gaylene, my name is Bryan and I’m finishing up testing to hopefully get listed. We..."
@brg, Hi Bryan, welcome to Mayo Connect. I hope that your testing will soon be finished and that you can get on the road to Mayo where you can learn if you will be a candidate for transplant. My transplant was in 2009 at Mayo Rochester. I know from my experience with Mayo transplant team that you will receive expert care before, during, and after your transplant.
You mention that your transplant Doc says to get there soon. Is your Doc at Mayo? Are you scheduled for an appointment yet?
@btg, It is stressful to plan for traveling and lodging while going for extended medical appointment. I have some information to share with you as you begin your planning.
Mayo has a free Concierge Service with information for all 3 Mayo Campuses. The staff at the concierge desk can help with hotel/lodging recommendations. Here is how you can contact them:
* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
Here is a discussion in the Visiting Mayo Group where you can chat with others about their Arizona lodging interests.
Your travel tips for Mayo Clinic in Phoenix and Scottsdale please
https://connect.mayoclinic.org/discussion/how-to-travel-phoenix-scottsdale-clinics/
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Welcome to Connect @btg! I had my liver transplant in August 2020. I discovered Connect about a year ago. It’s a remarkable supportive community. Sounds like you’re in good hands with your wife, though!
As you continue along your journey feel free to reach out, ask questions, share your concerns, etc. We’ve been where you are! I know I’ve learned a lot from the Connect community. There are many beneficial discussions and blogs in the Transplant Group.
Have you met with your Mayo Transplant Team yet? Or, is this your first trip?!