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Thank you!
Did you have your Sediment and CRP checked regularly? They check mine, and when it’s back down, they have me taper off the Prednisone. When I get down to 5mg, I can go about a week, and then the pain is not tolerable.
I am also on Cymbalta, which I really don’t feel is helping much.
It’s been a tough 7 years. I am hoping Duke can help me. Though I would love to go to Mayo.
Replies to "Thank you! Did you have your Sediment and CRP checked regularly? They check mine, and when..."
Once I was started on the prednisone, I just used how I felt each morning along with my daily pain and prednisone dosage to determine if I should lower my dosage. I think I only had the SED rate and CRP done for my annual exam by my PCP but I might have had one done at the 6 month or earlier mark for the first occurrence of PMR. The second time 6 years after remission, it was the PMR pain coming back and confirmed by a SED rate and CRP test that started me back on prednisone and I was tested again at my following annual exam. The PMR last a year and a half the second time around.
Good luck at Duke. My crp goes up as my prednisone is tapered down. I am starting methotrexate but it takes 3 months to kick in apparently.
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I forgot to mention that I’m also on 300 mg of pregablin-150 mg twice a day, also from the rheumatologist. She does tests every 3 months, I believe.
From a pain management doctor I get Percocet, 3 daily and 10mg twice of morphine for stenosis, DDD, sciatica and yet another problem too lengthy to even get into.
I was on much higher doses of pain medication which I just weaned myself off foolishly believing medical science had found something for people like me allergic to NSAIDS. But, silly me, I was wrong and the whole medical world decided everyone with pain was an addict and needed to suffer instead of being treated. When I stumbled across a doctor who realized I’d run out of medical choices, he was to intimidated by the culture to effectively treat my pain. But, he prescribes what he thinks he can get by with. Which, by the way, helps the most with my pain. And, I’m still not an addict.