Has anyone suffered from lumbar spinal stenosis? Did you have surgery?

Posted by patriciajennye @patriciajennye, Feb 4, 2018

Has anyone suffered from lumbar spinal stenosis and the severe pain that goes with it? Did you have surgery? Mayo Clinic?

Interested in more discussions like this? Go to the Spine Health Support Group.

@leslie324

Patriciajennye,
I have lumbar spinal stenosis in L3,4,5 plus damage from an old fracture around S1 which I reinjured in a fall in November. Orthopaedic surgeon said surgery would fix one but the other would get worse. I investigate laser therapy and serum injections. I chose laser therapy. I had over 2 months of laser and spinal decompression therapy and can now walk, do yoga and Zumba and housework. I go once a month to a chiropractor for a tune up. Am very glad I did this but was prepared to go to Mayo Clinic if it did not work. Cost was $6000 in Rochester NY area plus $98 for tune up. My Medicare advantage plan does not cover it. You are in my prayers. Leslie324

Jump to this post

My surgery was good until I got greedy with my activities. Respect the surgeons work and use both moderation and common sense to keep from returning to that world of hurt. Many surgeons won’t go in there a second time.

REPLY

I have severe spinal stenosis I am having problems with blurred vision does anyone suffer from this

REPLY
@eileenpetko

I have severe spinal stenosis I am having problems with blurred vision does anyone suffer from this

Jump to this post

@eileenpetko yes, I know what you mean. Is your stenosis in the cervical spine? Does your doc give you steroids or baclofen? So far, my symptoms are temporary after a movement mistake (looking up!) but afraid someday soon they will last a lot longer.

REPLY
@eileenpetko

I have severe spinal stenosis I am having problems with blurred vision does anyone suffer from this

Jump to this post

@eileenpetko You may be interested in these articles from MSK Neurology. They are written for physical therapists and are long. See the section on Thoracic Outlet Syndrome. This is more common with spine patients because the same injury that can cause a spine problem can also trigger TOS which can affect vision.

https://mskneurology.com/atlas-joint-instability-causes-consequences-solutions/
"Thoracic outlet syndrome can lead to symptoms of vertebrobasilar insufficiency, such as vertigo, confusion, and blurred vision, especially during cervical rotation and/or extension. It may also cause migraines, thunderclap headaches and more. And, as mentioned, although this may seem to be a vestibular dysfunction, it may turn out to be of vascular origin. It may also cause entrapment of the vagus and phrenic nerves, as well as the whole brachial plexus, affecting the autonomic nervous system and causing many diffuse issues, such as coughing, tinnitus, clogged ear syndrome, chest pain, heart pain, dry throat, hiccups, difficulty breathing and even atrial fibrillation. Read more in my thoracic outlet syndrome article."

https://mskneurology.com/how-truly-treat-thoracic-outlet-syndrome/

I have TOS, and have had a cervical spine problem with a collapsed C5/C6 disc with spinal cord compression (stenosis). I had successful spine surgery at Mayo, but I still have TOS and work on that with physical therapy.

Do you have any arm symptoms with pain and your hands turning blue or purple? That could be TOS, and it is often missed by doctors. have you heard of TOS before?

REPLY

Yes I suffer from severe spinal problems never heard of tos thank you or letting me know had one surgery afraid of another your information is very helpful

REPLY
@windyshores

@eileenpetko yes, I know what you mean. Is your stenosis in the cervical spine? Does your doc give you steroids or baclofen? So far, my symptoms are temporary after a movement mistake (looking up!) but afraid someday soon they will last a lot longer.

Jump to this post

I had surgery for my stenosis I'm still strugering to get around mine is affecting my legs and feet it really hurts to do things I used to the more I try the more it hurts will never get surgery again

REPLY
@eileenpetko

I had surgery for my stenosis I'm still strugering to get around mine is affecting my legs and feet it really hurts to do things I used to the more I try the more it hurts will never get surgery again

Jump to this post

So sorry, best wishes and know that your comment is helpful to others.

REPLY

My story is a lot like all of yours. I was injured in an assault 20 years ago. I have stenosis, degenerative disc disease, arthritis, and herniated discs in both my lumbar and cervical spine. I've already had 2 cervical and one lumbar disc surgeries. I have a nerve stimulator in my lumbar spine and have had nerve ablation done to both lumbar and cervical nerves. I'm due for my next lumbar ablation next month. I'm also beginning to have problems in my SI joint and have had injections there, with little relief. I cannot stand, sit, or lie down for very long without pharmaceutical assistance. As medical marijuana is now legal where I live, I am thankfully now off all opioids, but still have daily pain.
I am 56 years old and have to use a wheelchair if going to a large event that requires a standing or walking. I also know that I will eventually deteriorate to permanently needing a wheelchair. I try not to dwell on what my life will become and hope that some day there will be a cure, and that my medicare advantage plane will pay for it.

REPLY
@lorie1207

My story is a lot like all of yours. I was injured in an assault 20 years ago. I have stenosis, degenerative disc disease, arthritis, and herniated discs in both my lumbar and cervical spine. I've already had 2 cervical and one lumbar disc surgeries. I have a nerve stimulator in my lumbar spine and have had nerve ablation done to both lumbar and cervical nerves. I'm due for my next lumbar ablation next month. I'm also beginning to have problems in my SI joint and have had injections there, with little relief. I cannot stand, sit, or lie down for very long without pharmaceutical assistance. As medical marijuana is now legal where I live, I am thankfully now off all opioids, but still have daily pain.
I am 56 years old and have to use a wheelchair if going to a large event that requires a standing or walking. I also know that I will eventually deteriorate to permanently needing a wheelchair. I try not to dwell on what my life will become and hope that some day there will be a cure, and that my medicare advantage plane will pay for it.

Jump to this post

So sorry to read your life story I'm 70 and living in assisted living been suffering most of my life have much diffuties getting around I still I'm able to walk but it hurts so much will pray for all you in here

REPLY
@eileenpetko

So sorry to read your life story I'm 70 and living in assisted living been suffering most of my life have much diffuties getting around I still I'm able to walk but it hurts so much will pray for all you in here

Jump to this post

Thank you for your kindness Lori

REPLY
Please sign in or register to post a reply.