yes. the comment STILL blows me away at this point in time...one thing comming from a clueles person, quite another comming from a provider. i was told that for over 3 years..demanded referrals and was treated as if i was just another 50 something middleaged woman....and you know how they complain... i told her i don't fit the fibro tag she stuck me with...to many old injuries...symptoms didn't match...well the skinny is i have multiple auto immune disorders...soup to nuts..
you have a busy life with small children. it's good to keep moving as much as possible. but when they have down time so should you...a wee bit of pampering has theraputic effects. A nice hot bath, heat pads...even for just a few mins can be just enough to make the next hour bearable. have they screened you for other auto immune disorders? often they come in clusters it seems..
i reply to those "thoughtful" comments with " it's difficult for people to begin to understand how this illness can be so painful when you can't see it from the outside. sometimes as weird as it sounds it would be easier for people like me if there was some easy identifiable "mark" to give others a clue....but we don't because it is on the inside. i marvel at times how rude and insensitive seemingly intellegent people are breath takingly ignorant, cruel or both. That usually shuts them up or opens the conversation up for further discussion........
take a little time for yourself....enlist family or friends and do for yourself, ..just you...when you can. it is good not just for your body but your soul also. hope you have lighter days ahead.