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Aneurysm, Thalamic stroke: What can we do further for recovery?
Stroke & Cerebrovascular Diseases | Last Active: Mar 17 3:31pm | Replies (14)Comment receiving replies
My husband had thalamus strokes in. April 2021...three. He has a serious sensory issue. The electrical shock feeling that you describe along right side of his body. It has been frustrating because so few know or understand what you guys experience! That includes the clinicians! We tried an off label treatment that held great promise for a day but the symptoms quickly returned. His only relief is getting into a pool of water. Oddly, the electrical feeling totally goes away. He exercises in the pool to keep muscle tone on right side. Fortunately, he does not have the headaches! I sure pray there is someone or something that can be found to help help you and all the others dealing with these difficult issues from Thalamic stroke. He has tried a few meds but not really noticing any improvement. Maybe sleeping a lil better with the Gabapentin but no help with sensory issues. There has to be something!! Please share if you have found anything that helps you? Was your vision affected? His was... he has a small blind spot from right out of both eyes. Hence, I do more of his texting etc.
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I’m new at using this Mayo Clinic site. His is my second reply. To pickleballnut, your husband is lucky to have you. I had my stroke in 2006 with no motor damage but I did come away with “post-stroke central pain” or sometimes the old “Thalamic pain” if you’re looking it up. So far Lyrica (pregabalin):is what does me the most good. Savella keeps my fingers and feet from feeling like they’re on fire at night. Lamotrigne seems to have helped with the rest, though a lot of it remains, but I can think about other things now but the pain. Also. Gabapentin may need to be prescribed in HUGE doses to help his pain. I asked to be put on Lyrica instead. I also asked to be prescribed lamotrigne. For his kind of pain you need to be proactive. My meds may not work for you. I just wanted to tell you that you are probably alone. Sorry. It doesn’t go away. Keep pushing. My best to both of you.