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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@dulwich

I ve been on it for 18 months and darkening of skin, including age spots and skin driness are the main side effects. People think I have been on vacation lols. You will need lots of sun protection and moisturizer
The Gastrointestinal side effects listed seem to be a non issue for most people
In practice the side effects are very benign relative to other MAC drugs and MUCH easier to take than rifampin
In terms of results it is unclear how well it works -studies are ongoing

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Replies to "I ve been on it for 18 months and darkening of skin, including age spots and..."
almap | @almap | Jan 16, 2022

Thank you, I’m glad to hear the GI issues are not the main problem since the other antibiotics she is on are really hard on her. I hope and pray for these meds to work for all suffering with this awful MAC infection.

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almap | @almap | Jan 16, 2022

I forgot to ask if you’ve noticed improvement in the18 months?

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Nancy C | @nac1 | Jan 20, 2022

Are you taking the drug daily? Combined with any other antibiotics?

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