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Incisional hernia after transplant: Anyone else?

Transplants | Last Active: Oct 28, 2023 | Replies (173)

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@rosemarya

@gaylea1, I have wondered about you after your liver transplant and the complex issues that you were experiencing. I wish that this opportunity to catch up with you would be a procedure free conversation. But around these transplant coffee sipping discussions, we know that anything and everything is possible. We are stronger together because we are each walking a unique path together. Ironic isn't it?
Do you know that I can still remember getting a response from you in one of the Mayo Connect Transplant discussions when you announced that you had "Received the Call and were headed to the hospital to get your transplant"! It still gives me chills to think about that moment.

I want to introduce you to @kathycaudle, @melody12, @jackie421blfdgurl, who have shared their experiences. Each has had a different abdominal bulging problem, and each has had a different medical diagnosis and care.
Kathy, Jackie, Melody, I think that @gaylea1 needs us to lend an ear and to be with her during this ugly time that she is facing. What would you like to share with her from your experience that helped you to look forward during your struggle? How did you manage the discomfort, the surgery, the anxiety, and the pain?

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Replies to "@gaylea1, I have wondered about you after your liver transplant and the complex issues that you..."

@rosemarya I remember telling you right when the call came. I was so excited after the two long grueling years waiting for it. You and the group were my lifeline during that time. I'm so happy that I'm still able to connect with all my ongoing issues. Your support is so much appreciated.

@gaylea1 Hi..my experience with prior to transplant was basically asymptomatic other than esophageal varices and banding 20+ times. I was diagnosed 2014 with NASH, 2016 liver cancer,then 2019 need transplant. I received my blessed liver 11/19 from Mayo Clinic Jacksonville. After returning home in Jan 2020 I got very sick with severe bronchitis, laryngitis, sinusitis...coughed for 4-6 weeks which started my hernia right side just below my breast. It's now the size of a honey dew melon. I've talked with my transplant Dr, saw a surgeon and saw my PCP...the consensus is as long as it's not causing me pain or discomfort, no vomiting or fever leave it alone...I've never had a 'twiggy' body, I'll be 73 in July...I don't like it being there, but I can live with it.
I pray you'll find the right outcome for you and find some relief.🙏💚