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Autoimmune Diseases | Last Active: Oct 8, 2022 | Replies (10)

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@jetsetter

I’m not sure about the numbers, but you should do some reading on a couple of websites that will explain it all and give you access to those of us who have Sjogrens.

This one is great for help from other Sjogren’s patients in how to deal with symptoms and all sorts of other things people run into when dealing with Sjogrens:

smartpatients.com

One is https://www.sjogrensadvocate.com

It was started by an MD who has Sjogrens. It has wonderful resources about diagnosis as well as many other information. Don’t try to read it all at once. Often a Sjogrens diagnosis takes years due to the varied nature of the manifestations if the disease. Basically, if you have many of the symptoms even if you don’t check all the boxes, you could be diagnosed from looking at the whole picture. Some doctors will not give the diagnosis unless you fill in all the boxes!

The other website is:

https://www.sjogrens.org

Getting on hydroxychloroquine as soon as possible can help prevent the progression and lessen the severity of many of the symptoms.

Good luck to you, you have to get educated and be your own advocate. I would recommend seeing a rheumatologist but not all rheumatologists are knowledgeable about Sjogrens or don’t treat it as the systemic disease it is, only calling it a dryness issue.

Take heart, there are treatments and there are lots of resources out there to help you!

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Replies to "I’m not sure about the numbers, but you should do some reading on a couple of..."

can i ask my sinus dr was the one who sjorgen's and referred me to a rheumotologist. problem is the rheumotologist cant see me until feb unless a cancellation comes up. which makesme a little nervous. originally when my sinus dr referred me he suspected it do to my dry mouth, i had hoped he was wrong andmy dry mouth was somehow relate to my re-ammurgence of allergies(i'm being re-allergy tested tday) but then i went back to my eye dr to check for dry eye as my eyes were still bothering me even after using my allergy drops. he said ihad dry eye. and gave me some dry eye drops to use three times a day. i dont think its as bad a some though i can still make tears and the dry eye drops do help. so until i can see the rheumotologist i stay hydrated like my sinus dr said i also gargle with biotene and salt water. just wondering your thoughts? also tested neg for 5 sjorgens antibody bloodwork. also seeing nathurpath dr next week