How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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@renm

Thank you for your response.

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For those wanting to know more about sjogren’s and dry eyes, this is a good discussion. Maybe @gingerbear. @loribmt. And @sue225 could tell you more about it
https://connect.mayoclinic.org/discussion/sjogrens/

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@becsbuddy

For those wanting to know more about sjogren’s and dry eyes, this is a good discussion. Maybe @gingerbear. @loribmt. And @sue225 could tell you more about it
https://connect.mayoclinic.org/discussion/sjogrens/

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@ejrquast,
@renm @becsbuddy
I think this is the new treatment for dry eyes which was recently approved by the FDA that you were asking about.
It’s called Tyrvaya (varenciline). It looks promising and is actually a nasal spray! I posted an article below.
https://www.eyecarecentermd.com/blog/tyrvaya-varenciline-nasal-spray-approved-by-us-food-and-drug-administration-fda-for-dry-eye-treatment/#:~:text=November%2021%2C%202021%20by%20Dr.%20Shedlo%20Tyrvaya%20%28varenciline%29%2C,development%20for%20patients%20suffering%20from%20moderate-to-severe%20dry%20eye.
I have a number of acquaintances who’ve undergone a stem cell transplant. Often that can lead to some very serious dry eye issues. There is a treatment which uses their own blood to help create a specialty serum for them. There are specialty pharmacies which can make this in very amounts for each patient.
https://www.verywellhealth.com/autologous-serum-eye-drops-3422030#:~:text=Autologous%20serum%20eye%20drops%20are%20eye%20drops%20manufactured,fibronectin%2C%20and%20growth%20factors%20that%20promote%20epithelial%20health.
@ ejrquast even when using the Systane night time ointment and drops, are you still having severe dry eyes?

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@loribmt

@ejrquast,
@renm @becsbuddy
I think this is the new treatment for dry eyes which was recently approved by the FDA that you were asking about.
It’s called Tyrvaya (varenciline). It looks promising and is actually a nasal spray! I posted an article below.
https://www.eyecarecentermd.com/blog/tyrvaya-varenciline-nasal-spray-approved-by-us-food-and-drug-administration-fda-for-dry-eye-treatment/#:~:text=November%2021%2C%202021%20by%20Dr.%20Shedlo%20Tyrvaya%20%28varenciline%29%2C,development%20for%20patients%20suffering%20from%20moderate-to-severe%20dry%20eye.
I have a number of acquaintances who’ve undergone a stem cell transplant. Often that can lead to some very serious dry eye issues. There is a treatment which uses their own blood to help create a specialty serum for them. There are specialty pharmacies which can make this in very amounts for each patient.
https://www.verywellhealth.com/autologous-serum-eye-drops-3422030#:~:text=Autologous%20serum%20eye%20drops%20are%20eye%20drops%20manufactured,fibronectin%2C%20and%20growth%20factors%20that%20promote%20epithelial%20health.
@ ejrquast even when using the Systane night time ointment and drops, are you still having severe dry eyes?

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Thank you, Lori, for taking the time to research dry eye treatments and share with us. I will be contacting my local Mayo eye doctor regarding this. Your time and research is greatly appreciated.

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@ejrquast

Thank you, Lori, for taking the time to research dry eye treatments and share with us. I will be contacting my local Mayo eye doctor regarding this. Your time and research is greatly appreciated.

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It was my pleasure. ☺️ I sure hope you find some relief from your dry eyes. It really robs us of some simple pleasures during the day, doesn’t it?

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@loribmt

It was my pleasure. ☺️ I sure hope you find some relief from your dry eyes. It really robs us of some simple pleasures during the day, doesn’t it?

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Indeed, it does. Thank you for your understanding. I will after I see my doctor.

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@sue225

What is just as effective is a warm washcloth as a compress and wiping the upper and lower lids. Recommended by my ophthalmologist. Have been doing the warm washcloth thing for years (30 years).

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My ophthalmologist here in Louisiana recommended the same thing, except he added washing the lids with johnson & johnson's baby shampoo. 70 years old and I couldn't have renewed my driver's license eye exam because of blurry vision. He said it was dry eyes (with uveitis) and suspected Sjogren's so he requested blood work which returned all normal values. So I guess I am in that 20%! He is pretty much convinced it is SS. By the way, after using eye drops for 3-4 weeks, passed my vision test with flying colors. Am driving as I always have. Then came Hurricane Ida on 08/29. Still trying to recover . . .

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I totally forgot about the baby shampoo...opthalmologist recommended that as well...so long ago. I was tested three times for Sjogren's..last time about 10 years+ ago, always negative. Cousins with dry eyes and one first cousin with Sjogrens..all on maternal side.
Just on Amazon today to order a small humidifier for bedroom. All that winter heating is creating a dry eye hostile desert environment@
Congrats on the driving test.

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@rickie

My ophthalmologist here in Louisiana recommended the same thing, except he added washing the lids with johnson & johnson's baby shampoo. 70 years old and I couldn't have renewed my driver's license eye exam because of blurry vision. He said it was dry eyes (with uveitis) and suspected Sjogren's so he requested blood work which returned all normal values. So I guess I am in that 20%! He is pretty much convinced it is SS. By the way, after using eye drops for 3-4 weeks, passed my vision test with flying colors. Am driving as I always have. Then came Hurricane Ida on 08/29. Still trying to recover . . .

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I meant congratulations on the vision test!

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Has anyone had PRP lacimal injection?

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@loribmt

@ejrquast,
@renm @becsbuddy
I think this is the new treatment for dry eyes which was recently approved by the FDA that you were asking about.
It’s called Tyrvaya (varenciline). It looks promising and is actually a nasal spray! I posted an article below.
https://www.eyecarecentermd.com/blog/tyrvaya-varenciline-nasal-spray-approved-by-us-food-and-drug-administration-fda-for-dry-eye-treatment/#:~:text=November%2021%2C%202021%20by%20Dr.%20Shedlo%20Tyrvaya%20%28varenciline%29%2C,development%20for%20patients%20suffering%20from%20moderate-to-severe%20dry%20eye.
I have a number of acquaintances who’ve undergone a stem cell transplant. Often that can lead to some very serious dry eye issues. There is a treatment which uses their own blood to help create a specialty serum for them. There are specialty pharmacies which can make this in very amounts for each patient.
https://www.verywellhealth.com/autologous-serum-eye-drops-3422030#:~:text=Autologous%20serum%20eye%20drops%20are%20eye%20drops%20manufactured,fibronectin%2C%20and%20growth%20factors%20that%20promote%20epithelial%20health.
@ ejrquast even when using the Systane night time ointment and drops, are you still having severe dry eyes?

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Thank you for this helpful information. Is the nasal spray available over the counter? (Tyrvaya (varenciline)) I didn’t see it on Amazon. I’ve just ordered the nighttime ointment you use.

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