← Return to Delayed Sleep Phase Syndrome: Are there others out there?

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Profile picture for maggienice @maggienice

Oh, we are out here. I am 83, have had Sleep Delay and everything with it since an infant, I was diagnosed about 43 years ago at the U. of Md. after seeing a clinical trial advertised. I was told I did not have insomnia, but what was then called Phase Lag. Later, I called The National Institutes of Health which was having a study and wanted me in it. I was studied for months by the doctor who labeled "the winter blues", Seasonal Affect Disorder. S A D. Periodically, I called to see if there was anything new, No. There is no cure. Light therapy helps with SAD, not with us. Trying to reset and advance your sleep schedule leads only to Non-24 which I have, I free run and my sleep delay has progressed as I age. I have adapted and adjusted, which is all one can do. At NIH, I was told I was "classic" and was asked to speak with another patient. It did nothing as he was unable to accept the diagnosis. There are a lot of us out here. Many people naturally turn to night shift jobs, but with Circadian Rhythm Disorder, Non-24, we just have to accept and adjust.

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Replies to "Oh, we are out here. I am 83, have had Sleep Delay and everything with it..."

I think I have this too. Have Always been a night owl, altho I now know a lot of little kids want to go in and sleep with Mom and Dad after they can walk. Work always kept me on a schedule pretty much. If I stayed up too late one week night I'd be OK the next day. But Dying the next day. I will look for Anything which will help me because I'd really Like to be in the mainstream with my schedule as much as possible.