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I'm New Here

Posted by cyclones30 @cyclones30, Jan 7, 2022

Hey everyone, I'm new here and to Mayo care but been dealing with varying symptoms since April of 2020. Anything from pressure in the head, tingling in various areas, ears ringing, and at times all that gets worse with driving a vehicle or my lawn mower.

Currently it's mostly head related with daily headaches that vary in severity. I still have issues driving. I've been trying no carb, no sugar, no dairy for a few months but so far haven't seen any changes. Any ideas? After this long I surely have anxiety that comes in as well as things aren't improving. I did feel almost normal a year ago after slowly getting by my symptoms, just to have a big relapse in Feb '21. Thanks

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Jan 7, 2022

Good afternoon @cyclones30, and welcome to Connect. Very clever headline...."I'm New Here". So let me roll out the welcome wagon and share.a bit about Connect. I am a mentor in the Neuropathy group as well as Joint replacements, Skin Health and maybe another one or two. Every group, which you can find on the Home page, has one mentor or more who have either been a patient themselves or have performed caregiving for someone with a particular condition. There are more than 70 groups and at least 22 mentors. We are here for you 24/7.

However, we need to know more what brings you to Connect. Are you looking for some help with finding supportive information about a particular disease, condition, or situation? Are you currently being treated by a clinician or other medical professional? Are you looking to find out what others have done successfully to keep a condition like yours under control?

When I first read your introduction, I thought I recognized some neuropathic symptoms. I also have experienced head tingles and pressure and I fight with Tinnitus in my ears every day. What issues do you face when driving?

It would be helpful to know what medication or treatments you have tried and which have been most successful. I am sorry about the large flare you had last February. I have "itch" flares and they are quite crushing to say the least. How are you avoiding another "relapse" at this time? Do you have your anxiety under control?

May you be free of suffering and the causes of suffering.
Chris

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 7, 2022

Hi @cyclones30, welcome.
I encourage you to look for discussions about ringing in ears and tinnitus in the Hearing Loss (Hearing Loss) and ENT (https://connect.mayoclinic.org/group/ear-nose-throat-conditions/) groups.

You may also enjoy connecting with members in the LCHF Living & Intermittent Fasting https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/

Have you been to see your primary care provider or a neurologist about these issues?

REPLY
cyclones30 | @cyclones30 | Jan 7, 2022

Thanks, I was brought here due to being in the Long Covid group. But since my stuff started just when Covid was hitting here in the US I wasn't tested since I didn't the major symptoms at the time. But after all sorts of MRI, blood tests, vertigo tests, hearing, etc etc etc it's all come back clean. So the theory is maybe long haul covid.

I started on Amitryptaline for a few months and not much improvement. I then was switched to Topamax for a few months and slowly felt better. Not sure if it was just me getting better or the meds. Because I felt the best while on it and also the worst (post-relapse). It also caused a kidney stone which is a usual side effect it sounds so I was done with that. The only other things I've been on lately were Zoloft and now Cymbalta due to anxiety from all my symptoms coming back it seems.

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 7, 2022
In reply to @cyclones30 "Thanks, I was brought here due to being in the Long Covid group. But since my..." + (show)
@cyclones30

Thanks, I was brought here due to being in the Long Covid group. But since my stuff started just when Covid was hitting here in the US I wasn't tested since I didn't the major symptoms at the time. But after all sorts of MRI, blood tests, vertigo tests, hearing, etc etc etc it's all come back clean. So the theory is maybe long haul covid.

I started on Amitryptaline for a few months and not much improvement. I then was switched to Topamax for a few months and slowly felt better. Not sure if it was just me getting better or the meds. Because I felt the best while on it and also the worst (post-relapse). It also caused a kidney stone which is a usual side effect it sounds so I was done with that. The only other things I've been on lately were Zoloft and now Cymbalta due to anxiety from all my symptoms coming back it seems.

Jump to this post

In that case, you'll want to check out the Post-COVID Recovery & COVID-19 group https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

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