Benzodiazepines

Posted by sears @sears, Sep 17, 2020

Does anyone know the CDC’s stance on benzodiazepines? For instance what they say about doctors refusing to refill prescriptions, tapering, doctors responsibilities to patients they have kept in Benzos long term?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @wmbcat
Here is the link to the Effexor discussion group that @sears mentioned.
- Tips on minimizing withdrawal symptoms from Effexor (aka Venlafaxine) https://connect.mayoclinic.org/discussion/tips-on-minimising-withdrawal-symptoms-from-effexor-aka-venlafaxine/

It sounds like you need caring guidance from a physician or psychiatrist. I hope your current doctor can provide that for you since I know how hard it would be to find a new doctor under the circumstances. You need a plan.

Forgive if you explained this in your first post. I just want to be clear. Are you on any anti-depressant or anti-anxiety medication right now?

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Yes. I’m on Paxil and have trying to taper off of Klonopin for 9 months. I’m in hell.

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Profile picture for wmbcat @wmbcat

Yes. I’m on Paxil and have trying to taper off of Klonopin for 9 months. I’m in hell.

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Let me start by saying that I'm not a doctor or qualified clinician. Until you talk with your doctor, I suggest not tapering any further.

You mentioned in your first post that you are reluctant to go into rehab because you fear that you would have to taper too fast. Remember that YOU are in control. As much as you don't feel like you're in control right now. I know. But you are the expert in you. You know how you are feeling. And you can say when the taper is too much or too fast.

Is your doctor usually good at returning your calls? Do you expect to hear by tomorrow?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Let me start by saying that I'm not a doctor or qualified clinician. Until you talk with your doctor, I suggest not tapering any further.

You mentioned in your first post that you are reluctant to go into rehab because you fear that you would have to taper too fast. Remember that YOU are in control. As much as you don't feel like you're in control right now. I know. But you are the expert in you. You know how you are feeling. And you can say when the taper is too much or too fast.

Is your doctor usually good at returning your calls? Do you expect to hear by tomorrow?

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I went to treatment in 2019 because of the Effexor withdrawals. That’s how I ended up on benzodiazepines. I want off of them. As for my doctor, they were good at responding until I think they realized they can’t help me anymore. They are functional medicine doctors. I don’t have a psychiatrist because he kept insisting I take MORE of the benzos. So I dropped him. My GP is a small town doctor and is no expert on benzodiazepines. He knows very little. I think I’m going to just leave tonight while my family sleeps and check myself in somewhere.

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Profile picture for wmbcat @wmbcat

I went to treatment in 2019 because of the Effexor withdrawals. That’s how I ended up on benzodiazepines. I want off of them. As for my doctor, they were good at responding until I think they realized they can’t help me anymore. They are functional medicine doctors. I don’t have a psychiatrist because he kept insisting I take MORE of the benzos. So I dropped him. My GP is a small town doctor and is no expert on benzodiazepines. He knows very little. I think I’m going to just leave tonight while my family sleeps and check myself in somewhere.

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Getting professional help is a really smart next step, wmbcat. I'm sending you strength to do that tonight. Do you have a facility near you? May I ask why you need to do this while your family sleeps? Wouldn't they want to know?

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Profile picture for wmbcat @wmbcat

Back in 2018, I diagnosed with what doctors thought was CDiff and they put me on vancomycin and Reglan. I had a very bad reaction to the Reglan and suddenly started having anxiety. It came out of nowhere. I had been on Effexor for 16 years when that happened and it had been working fine for 16 years and never had any anxiety or depression. When the anxiety started the doctors didn’t know what was causing it so they took me off of the Effexor cold turkey. I basically went into psychosis. I was in and out of hospitals for months and months and months with them trying to help me and they finally put me on Klonopin. That was in 2019. By early 2021 I had already reached tolerance and decided I would start tapering off of the benzo. I did that for nine months and it kept getting worse and worse and someone suggested that I try brain restoration NAD. I did that for 10 days and they switched me over to Valium to complete my taper. It didn’t help. I honestly don’t think I can do this for another nine months to a year every day. I wake up wanting to just die from the symptoms. I don’t have anxiety in my brain, I just have all these physical symptoms. Today I finally had a complete meltdown and told my family that I couldn’t do this anymore. I used to be a very successful business woman in Atlanta and traveled the world and did mission trips to Third World countries and now I’m curled up on the sofa wishing I could just fall asleep and never wake up. I know if I go into a rehab program they are just going to do a fast taper and then I will be left dealing with withdrawal symptoms. Someone please give me a recommendation. I can’t live like this anymore.

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Is there away to delete my whole post? I know what I have to do. I just don’t want this out there on the internet. Please. Thank you for your help.

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Profile picture for wmbcat @wmbcat

Is there away to delete my whole post? I know what I have to do. I just don’t want this out there on the internet. Please. Thank you for your help.

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No one knows who you are. Don’t worry. Just take care of yourself. God bless and good luck.

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Profile picture for wmbcat @wmbcat

Back in 2018, I diagnosed with what doctors thought was CDiff and they put me on vancomycin and Reglan. I had a very bad reaction to the Reglan and suddenly started having anxiety. It came out of nowhere. I had been on Effexor for 16 years when that happened and it had been working fine for 16 years and never had any anxiety or depression. When the anxiety started the doctors didn’t know what was causing it so they took me off of the Effexor cold turkey. I basically went into psychosis. I was in and out of hospitals for months and months and months with them trying to help me and they finally put me on Klonopin. That was in 2019. By early 2021 I had already reached tolerance and decided I would start tapering off of the benzo. I did that for nine months and it kept getting worse and worse and someone suggested that I try brain restoration NAD. I did that for 10 days and they switched me over to Valium to complete my taper. It didn’t help. I honestly don’t think I can do this for another nine months to a year every day. I wake up wanting to just die from the symptoms. I don’t have anxiety in my brain, I just have all these physical symptoms. Today I finally had a complete meltdown and told my family that I couldn’t do this anymore. I used to be a very successful business woman in Atlanta and traveled the world and did mission trips to Third World countries and now I’m curled up on the sofa wishing I could just fall asleep and never wake up. I know if I go into a rehab program they are just going to do a fast taper and then I will be left dealing with withdrawal symptoms. Someone please give me a recommendation. I can’t live like this anymore.

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Feeling for you deeply. Getting off Paxil was not easy and ive been on Lexapro for years as well as low dose klonopin. I took a gene sight test a few years ago that indicated other meds such as Wellbutrin would be more suitable but I couldn’t get thru the transition so just take low dose 10 mg of Lexapro. I’m low level functioning but understand how you feel. This pandemic has just exacerbated our loneliness anxiety and depression. My sleep routine is very strange and disrupted.
I just retire to bed very early and read then awake at 3 am with disturbing dreams.
I force myself up to take care of cats and go to gym. Hope you can find a way through and find some enjoyable activity.
Don’t give up.

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Profile picture for wmbcat @wmbcat

Yes. I’m on Paxil and have trying to taper off of Klonopin for 9 months. I’m in hell.

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Hi I have been in antidepressants for the past 20 years I’ve been on effexor, dint work Venlafaxin, dint work sertraline 100 mg it’s been working plus I take clonazepam 2mg and I been fine, I think you need to change your psychiatrist I change mine two times.

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Profile picture for wmbcat @wmbcat

Yes. I’m on Paxil and have trying to taper off of Klonopin for 9 months. I’m in hell.

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I was given Paxil when I was first diagnosed with anxiety. It had a horrible effect on me. I felt very manic. I was taken off of it in less than a week. Since then I've tried effexor which worked very well for me. I stopped it cold turkey and had withdrawals that landed me in the er and since I was days off of it I basically had to sit through the withdrawal. I was then put on prozac and it has been the best for me to date. I feel really good with minimal anxiety and 0 panic attacks. I hope you get to feeling better very soon. You don't deserve what you're going through. I hope your dr will listen to you and give you reassure that he will try and help you get better. A lot of times it's about trial and error. It could be a mixture of things making you feel this way. Take care and don't give up!

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Profile picture for wmbcat @wmbcat

Back in 2018, I diagnosed with what doctors thought was CDiff and they put me on vancomycin and Reglan. I had a very bad reaction to the Reglan and suddenly started having anxiety. It came out of nowhere. I had been on Effexor for 16 years when that happened and it had been working fine for 16 years and never had any anxiety or depression. When the anxiety started the doctors didn’t know what was causing it so they took me off of the Effexor cold turkey. I basically went into psychosis. I was in and out of hospitals for months and months and months with them trying to help me and they finally put me on Klonopin. That was in 2019. By early 2021 I had already reached tolerance and decided I would start tapering off of the benzo. I did that for nine months and it kept getting worse and worse and someone suggested that I try brain restoration NAD. I did that for 10 days and they switched me over to Valium to complete my taper. It didn’t help. I honestly don’t think I can do this for another nine months to a year every day. I wake up wanting to just die from the symptoms. I don’t have anxiety in my brain, I just have all these physical symptoms. Today I finally had a complete meltdown and told my family that I couldn’t do this anymore. I used to be a very successful business woman in Atlanta and traveled the world and did mission trips to Third World countries and now I’m curled up on the sofa wishing I could just fall asleep and never wake up. I know if I go into a rehab program they are just going to do a fast taper and then I will be left dealing with withdrawal symptoms. Someone please give me a recommendation. I can’t live like this anymore.

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I had a negative experience with Trintillex, but got some help getting off it and transitioned to Prozac, and life is fine. Much to be said for some of the older medications. Pleased you are on a good path forward.

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