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How do I know if I have post interferon syndrome?
Infectious Diseases | Last Active: Sep 19 12:21pm | Replies (18)Comment receiving replies
Good question, @mrhaney. The combination of interferon and ribavirin is now no longer used as safer, shorter highly effective and more tolerable tablet only treatments are now available. For example, newer treatments called direct-acting antivirals (DAAs) are now the standard of care for treating hepatitis C. This is largely because they’ve been shown to be more effective than interferons and to cause fewer side effects.
But if you’ve taken interferons in the past, you might still be seeking information on the side effects that may occur due to long-term hepatitis C treatment with interferons.
The list of side effects is long. You can read more here:
- Interferons for Hepatitis C: Understanding the Long-Term Side Effects https://www.healthline.com/health/hepatitis-c/interferons-long-term-effects
Talk with your doctor. They can tell you if symptoms you’re experiencing may be linked with previous treatment with interferons and if you have post interferon syndrome. They can also offer ways to help ease your symptoms.
Replies to "Good question, @mrhaney. The combination of interferon and ribavirin is now no longer used as safer,..."
Have you seen a Reheumatologost. Have you had auto immune system checked. I was at stage 3-4 cirioss and took the interpheron and ribivan in 2007. I was cured. In 2017 all the symptoms associated with the treatments came back. The symptoms come and go now. I think it's a matter of piecing together all your symptoms and blood work. Good luck
Rob
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When I talked with doctors about pain associated with postinterferon syndrome I was never taken serious because I'm just a number.
Thirteen years post treatment my condition worsens .
Its remarkable that Nobel Prize winners and medical community havent dealt with the aftermath of patients that were irreversibly damaged by interferon ribavirin treatment.
I took treatment for hep c in 2010 well after facts were known about the toxicity and damage it could do to individuals.
They wouldn't be able to sell their snake oil if victims were aware of the damage it would do.
I was sick. Decisions I made should of been guided by physician and other medical staff in preparing people for treatment before treatment as well as assist in how treatment and post treatment follow up is understood and managed.
No words in black box explained what happened to me.
It's their responsibility they should be ashamed of themselves.