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Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
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@ejrquast

Linda, I am so sorry to hear that you had extreme rashes. How are you doing on Ibrutinib? I took Ibrutinib for just over two years. Sounds like your local specialist and Dr. Binder work well together. May you continue to do well on Ibrutinib.

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Replies to "Linda, I am so sorry to hear that you had extreme rashes. How are you doing..."
puffwithfluff | @puffwithfluff | Dec 16, 2021

Ibrutinib seems to be keeping my lab levels in check and will continue with it instead of IV infusion which seemed to cause my reaction and being hospitalized a second time.
I have to be tested next week for possible amyloidosis and will also have to see a neurologist.

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